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# Bioethics Research Center

At Washington University School of Medicine

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## Pages

- [Home](https://bioethicsresearch.org/) - Learn More About BRC ActivitiesRESEARCH PROJECTSRESEARCH SERVICESEDUCATIONCONSULTATIONSNEXT RCR EVENT26 AUGUST Foundations Session “SMART Strategies for Professional Decision Making in Research” Wednesday, August 26, 2026 12:00 PM to 2:00 PM IN-PERSON SESSION: Cori Interactive Classroom McDonnell Medical Sciences Building, First Floor REGISTER NOW NEWS & EVENTS Frontiers in Neurology Publishes BRC Paper Exploring Attitudes Toward Machine
- [RCR Course Calendar](https://bioethicsresearch.org/rcr/rcr-course-calendar/) - RCR Course CalendarRegistrants will receive an email reminder the day before the RCR session with all needed information. For directions to the classrooms for in-person sessions, please click HERE. Please note that registration closes at 12:00 p.m. the day before the session. Contact the RCR Program Manager at brc@wustl.edu with any questions. Foundations Session “SMART Strategies
- [News](https://bioethicsresearch.org/news/) - Home: Giving News BRC News & Events– 2026 – NEW STUDY REVEALS WHAT PATIENTS, CAREGIVERS, AND NEUROSURGEONS REALLY THINK ABOUT MACHINE LEARNING-ASSISTED BRAIN CANCERA new paper from the Bioethics Research Center, published in Frontiers in Neurology, offers one of the first in-depth looks at how the people most affected by glioblastoma — patients, their caregivers,
- [Consultations](https://bioethicsresearch.org/consultations/) - Consultations: Request Form Consultations After August 31, 2026, the Bioethics Research Center’s consultation service will be discontinued due to loss of funding. FACULTY OFFER CONSULTATIONS IN THREE AREAS:*Research EthicsRESEARCH ETHICS Questions should first be addressed to the appropriate WUSTL oversight or compliance office. All requests for this service are routed through the Regulatory Support
- [RCR Event Archive](https://bioethicsresearch.org/rcr/rcr-course-calendar/rcr-event-archive/) - RCR Event Archive2025-2026 Events Date: Thursday, August 28, 2025 Speaker: Dr. Alison Antes, PhD Title: Foundations Session “SMART Strategies for Professional Decision Making in Research” Date: Wednesday, September 10, 2025 Speaker: Dr. Jessica Mozersky, PhD Title: “Exploring Dilemmas in Authorship and Publishing” Date: Wednesday, October 1, 2025 Speaker: Dr. Joseph Dougherty, PhD Title: “Challenges and
- [Responsible Conduct of Research Course (RCR)](https://bioethicsresearch.org/rcr/) - RESPONSIBLE CONDUCT OF RESEARCH COURSE (RCR)*After August 31, 2026, RCR courses will no longer be available through the Bioethics Research Center due to loss of funding. We do not know how the university plans to help scholars fulfill their RCR training requirements. You may find more information regarding training on the OVCR’s website. The RCR
- [Tristan McIntosh, PhD](https://bioethicsresearch.org/people/tristan-mcintosh-phd/) - People: McIntosh TRISTAN MCINTOSH, PHD TRISTAN MCINTOSH, PHD Assistant Professor of Medicine 314-454-8164 T.MCINTOSH@WUSTL.EDU AREAS OF EXPERTISE: Neuroethics & responsible neurotechnology development Industry-academic partnerships Stakeholder engagement & consensus methods Professional development for researchers Leading and managing research teams Addressing physician misconduct Speaking & Collaboration: Dr. McIntosh welcomes inquiries regarding research collaboration, speaking engagements, and advising
- [BRIDGE: Building Religious Insights for Developing Genomic Engagement](https://bioethicsresearch.org/projects/bridge/) - Projects: BRIDGE BRIDGE: Building Religious Insights for Developing Genomic EngagementGRANTThe NIH National Human Genome Research Institute (NHGRI), Grant #1UM1HG014591 04/09/2026-02/28/2031 KEY PERSONNEL James DuBois, DSc, PhD Principal Investigator Lauren Baker, PhD Co-Investigator Bryan Sisk, MD, MSCI Co-Investigator Kari Baldwin, MSW Project Manager RCR TRAINING Alison Antes, PhD Tristan McIntosh, PhD BIOLA UNIVERSITY PRINCIPAL INVESTIGATORS Liz
- [Projects](https://bioethicsresearch.org/projects/) - Projects Research ProjectsWe are social scientists and clinical investigators who study ethical, social, and professional issues that affect patients, researchers, and health care providers. We seek to understand issues and explore real-world solutions. Below we list ongoing and past projects. CURRENT PROJECTS BRIDGE: Building Religious Insights for Developing Genomic Engagement Psychotropic Medication Decision Making for
- [Psychotropic Medication Decision Making for Youth in Foster Care](https://bioethicsresearch.org/projects/pmdm-foster-youth/) - Projects: PMDM for Youth in Foster Care Psychotropic Medication Decision Making for Youth in Foster Care: Challenges, Barriers, and Facilitators to Informed Consent, Assent, and RefusalGRANTThe Greenwall Foundation 01/01/2025-12/31/2026 KEY PERSONNEL Lauren Baker, PhD Principal Investigator PROJECT WEBSITEDESCRIPTIONSignificance: This project aims to examine the challenges, barriers, and facilitators to informed consent, assent, and refusal in
- [Kari Baldwin, MSW](https://bioethicsresearch.org/people/kari-baldwin/) - People: Baldwin KARI BALDWIN, MSW KARI BALDWIN, MSW Senior Project Manager 314-747-2703 KARIBALDWIN@WUSTL.EDU Kari Baldwin is a Senior Project Manager in the Bioethics Research Center (BRC) at Washington University School of Medicine. She earned her master’s degree in social work from the University at Albany, SUNY. She first joined the Division in 2012. She enjoys
- [People](https://bioethicsresearch.org/people/) - People BRC Personnel ALISON L. ANTES, PHD Director of Education, Associate Professor of Medicine314-362-6006 AANTES@WUSTL.EDU LAUREN L. BAKER, PHD Instructor of Medicine314-273-9995 BAKERLAUREN@WUSTL.EDU KARI BALDWIN, MSW Senior Project Manager314-747-2703 KARIBALDWIN@WUSTL.EDU JOYCE BALLS-BERRY, PhD, MPE Faculty Affiliate314-362-5000 J.BALLS-BERRY@WUSTL.EDU CHRISTINE BEREITSCHAFT, MSW Clinical Research Coordinator314-273-9896 CHRISTINEB@WUSTL.EDU ELIZABETH BINGHEIM, MPH, CPH Research TechnicianBINGHEIM@WUSTL.EDU OLIVIA BUCKLEY Graduate Research AssistantBUCKLEY.O@WUSTL.EDU
- [Spondita Goswami, PhD](https://bioethicsresearch.org/people/spondita-goswami-phd/) - People: Goswami SPONDITA GOSWAMI, PHD SPONDITA GOSWAMI, PHD Staff Scientist GOSWAMI@WUSTL.EDU SPONDITA GOSWAMI, PhD, is a Staff Scientist in the Bioethics Research Center at Washington University School of Medicine in St. Louis. She earned her PhD in Experimental Psychology (Social concentration), with a secondary concentration in quantitative and qualitative methods, and completed postdoctoral training focused
- [Erin Solomon, PhD](https://bioethicsresearch.org/people/erin-solomon-phd/) - People: Solomon ERIN SOLOMON, PHD ERIN SOLOMON, PHD Senior Scientist 314-273-1727 ERIN.SOLOMON@WUSTL.EDU ERIN SOLOMON, PhD, is a Senior Scientist in the Bioethics Research Center in the Division of General Medical Sciences at Washington University School of Medicine in St. Louis. She completed her PhD in social psychology from Saint Louis University with a secondary concentration
- [Anna Kerr, PhD](https://bioethicsresearch.org/people/anna-kerr/) - People: Kerr ANNA KERR, PHD ANNA KERR, PHD Senior Scientist KERRA@WUSTL.EDU Anna M. Kerr, PhD is a health communication scientist whose research examines how patients, families, and clinicians navigate uncertainty in the context of rare and complex diseases. Her work focuses on improving communication, care coordination, and decision-making for individuals affected by vascular anomalies, cancer, and
- [Alison L. Antes, PhD](https://bioethicsresearch.org/people/alison-l-antes-phd/) - People: Antes ALISON L. ANTES, PHD ALISON L. ANTES, PHD Assistant Professor of Medicine 314-362-6006 AANTES@WUSTL.EDU ALISON ANTES, PhD, is an Associate Professor of Medicine of the Bioethics Research Center in the Division of General Medical Sciences at Washington University School of Medicine. Dr. Antes completed her PhD in Industrial-Organizational Psychology at the University of
- [Lauren L. Baker, PhD](https://bioethicsresearch.org/people/lauren-l-baker-phd/) - People: Baker LAUREN L. BAKER, PHD LAUREN L. BAKER, PHD Instructor of Medicine 314-273-9995 BAKERLAUREN@WUSTL.EDU Lauren L. Baker, PhD, is an Instructor of Medicine in the Bioethics Research Center at Washington University School of Medicine. Dr. Baker received her PhD with distinction in Health Care Ethics from Saint Louis University. She is currently a scholar in the
- [EBCP](https://bioethicsresearch.org/projects/ebcp/) - Projects: Evidence Based Consent Practices Implementing Evidence-based Informed Consent Practices in Clinical TrialsGRANTNIH/NIA R01 AG058254-01A1 08/2018 – 04/2023 KEY PERSONNEL James M. DuBois, DSc, PhD Principal Investigator Jessica Mozersky, PhD Co-Investigator Ross Brownson, PhD Co-Investigator Melody Goodman, PhD Co-Investigator Jeanine Harris, PhD Co-Investigator Erin Solomon, PhD Project Manager PROJECT WEBSITEDESCRIPTIONThe National Institutes of Health (NIH)
- [Testing Services](https://bioethicsresearch.org/research-services/testing-services/) - Research Services: Testing Services TESTS & DESCRIPTIONS*The Bioethics Research Center (BRC) has developed a number of tests or measures that address a wide range of ethical, social, and professional issues in healthcare and health research. These measures were developed using best practices for item generation including expert consultation, cognitive interviewing, determining the dimensions or factors
- [James DuBois, DSc, PhD](https://bioethicsresearch.org/people/james-dubois-dsc-phd/) - People: DuBois JAMES DUBOIS, DSC, PHD JAMES DUBOIS, DSC, PHD BRC Director, Steven J. Bander Professor of Medical Ethics and Professionalism, Professor of Psychology 314-747-2710 DUBOISJM@WUSTL.EDU JAMES DUBOIS is the Executive Director of the Bioethics Research Center, the Steven J. Bander Professor of Medical Ethics and Professionalism, and Professor of Psychological and Brain Sciences, at Washington University
- [Resources and Topics](https://bioethicsresearch.org/rcr/resources_topics/) - RESPONSIBLE CONDUCT OF RESEARCH COURSE (RCR)* RESOURCES Syllabus SMART Decision-Making Strategies Leadership & Management Habits Infographics for RCR Topics TOPICS This following diverse RCR subjects are covered in the course seminars specifically or as cross-cutting topic: Animal Welfare Collaborative Research Conflicts of Interest Contemporary Ethical Issues in Biomedical Research, e.g., Genetics, Diversity Human Subjects Protections
- [FAQs](https://bioethicsresearch.org/rcr/rcr_faqs/) - FAQsWHAT IS THE COURSE FORMAT? The format of all ICTS RCR training is designed to include lecture and active learning such as small group discussion, case analysis, writing exercises, and brainstorming activities. These training approaches are evidence-based best practices. Trainees are expected to participate actively in all course sessions. WHAT ARE THE COURSE OBJECTIVES?Objectives of
- [Eligibility and Requirements](https://bioethicsresearch.org/rcr/eligibility_requirements/) - RESPONSIBLE CONDUCT OF RESEARCH COURSE (RCR)* ELIGIBILITY This course is sponsored by the Institute for Clinical and Translational Science (ICTS) at Washington University in St. Louis. The course is offered at no charge to trainees and scholars who are members of the Washington University Institute for Clinical and Translational Sciences (ICTS) and are enrolled in
- [Heidi Walsh, MPH, CHES](https://bioethicsresearch.org/people/heidi-walsh/) - People: Walsh HEIDI WALSH, MPH, CHES HEIDI WALSH, MPH, CHES Senior Project Manager 314-747-4221 HEIDIWALSH@WUSTL.EDU Heidi Walsh is a Senior Project Manager at the Bioethics Research Center. She manages research projects involving ethical, social, and professional issues that affect patients, researchers, and healthcare providers. Heidi also serves as the managing editor for Narrative Inquiry in
- [Directions](https://bioethicsresearch.org/directions/) - Directions DIRECTIONSThe Bioethics Research Center is located on the 8th floor of Barnard in Barnes-Jewish Hospital, on the campus of Washington University School of Medicine. To visit, park in the Plaza Garage. Use the enclosed pedestrian bridge to walk over to the hospital. Continue straight through the lobby towards the cafeteria. The Barnard elevators are
- [Exploring Ethical Considerations When Using a Machine Learning Algorithm to Predict Brain Tumor Prognosis and Inform Surgical Decisions](https://bioethicsresearch.org/projects/machine-learning-algorithm-to-predict-brain-tumor-prognosis/) - Projects: Exploring Ethical Considerations When Using a Machine Learning Algorithm to Predict Brain Tumor Prognosis and Inform Surgical Decisions Exploring Ethical Considerations When Using a Machine Learning Algorithm to Predict Brain Tumor Prognosis and Inform Surgical DecisionsGRANT3R01CA203861-08S1 August 2024 – July 2025 KEY PERSONNEL Tristan McIntosh, PhD Supplement Principal Investigator Eric Leuthardt, MD Supplement Co-Investigator;
- [Stephanie Milam, MD](https://bioethicsresearch.org/people/stephanie-milam/) - People: Milam STEPHANIE MILAM, MD STEPHANIE MILAM, MD Clinical Research Coordinator 314-747-0540 MILAM@WUSTL.EDU Stephanie Milam, MD is a Clinical Research Coordinator in the Department of Pediatrics’ Division of Hematology and Oncology at Washington University School of Medicine. She graduated with honors from the University of Illinois College of Medicine at Peoria, with subsequent clinical training
- [Emily Schenk](https://bioethicsresearch.org/people/emily-schenk/) - People: Schenk EMILY SCHENK EMILY SCHENK Education Program Manager 314-747-4220 ESCHENK@WUSTL.EDU Emily Schenk manages educational programming in the Bioethics Research Center (BRC), including The Professional Skills for Researchers Coaching Program, The Professional Skills for Researchers On-the-Road Workshops, and the Responsible Conduct of Research (RCR) course. She contributes to Compass and other center projects and initiatives.
- [Patti Curran](https://bioethicsresearch.org/people/patti-curran/) - People: Curran PATTI CURRAN PATTI CURRAN Communication Coordinator PCURRAN@WUSTL.EDU Patti Curran joined the Bioethics Research Center in 2019. She graduated from the University of Missouri in 2005 with a degree in graphic design. She began her career in publishing before transitioning to the field of community relations and communications. At the BRC, Patti serves as
- [Elizabeth Bingheim, MPH, CPH](https://bioethicsresearch.org/people/elizabeth-bingheim-mph-cph/) - People: Bingheim ELIZABETH BINGHEIM, MPH, CPH ELIZABETH BINGHEIM, MPH, CPH Senior Public Health Research Technician BINGHEIM@WUSTL.EDU Elizabeth Bingheim, MPH, CPH completed her Summer internship with the Bioethics Research Center in 2022 and joined on as full-time staff in the Fall of 2023. She received her Master of Public Health with a concentration in Epidemiology from
- [Christine Bereitschaft, MSW](https://bioethicsresearch.org/people/christine-bereitschaft-msw/) - People: Bereitschaft CHRISTINE BEREITSCHAFT, MSW CHRISTINE BEREITSCHAFT, MSW Clinical Research Coordinator 314-273-9896 CHRISTINEB@WUSTL.EDU Christine Bereitschaft, MSW is a clinical research coordinator in the Department of Pediatrics’ Division of Hematology and Oncology. Before she joined Washington University, she completed her Masters in Social Work from Saint Louis University, and she spent 18 years providing advocacy and
- [Meredith Parsons, MS, CHES](https://bioethicsresearch.org/people/meredith-parsons-ms-ches/) - People: Parsons MEREDITH PARSONS, MS, CHES MEREDITH PARSONS, MS, CHES Staff Scientist 314-286-0042 M.PARSONS@WUSTL.EDU MEREDITH PARSONS, MS, CHES, is a Staff Scientist in the Bioethics Research Center in the Division of General Medical Sciences at Washington University School of Medicine in St. Louis. She completed her Master’s of Science in Applied Health Behavioral Research from Washington
- [Ethical Challenges of ApoL1 Testing](https://bioethicsresearch.org/projects/ethical-challenges-of-apol1-testing/) - Projects: Ethical Challenges of ApoL1 Testing Identifying and Exploring Solutions to the Ethical Challenges of ApoL1 Testing of Donors with Recent African Ancestry Through Mixed Methods Research with StakeholdersGRANT1R01MD014161-01 NIMHD, R01 08/01/2019 – 02/28/2022 KEY PERSONNEL James M. DuBois, DSc, PhD Principal Investigator Tristan McIntosh, PhD Co-Investigator Sumit Mohan, MD, MPH Co-Investigator Ana Iltis, PhD
- [Registration](https://bioethicsresearch.org/rcr/register/) - COURSE REGISTRATION1) JOIN THE ICTS Become a member of the ICTS (free). 2) REGISTER FOR THE COURSE Scholars must register online at least one week prior to their first session. 3) REVIEW THE SYLLABUS Download and review the RCR Course syllabus. 4) COMPLETE PERCSSComplete the online PERCSS Core Curriculum.5) REGISTER FOR EVENTS Visit the course
- [Early Career Researcher Excellence](https://bioethicsresearch.org/projects/early-researcher-excellence/) - Projects: Early Career Researcher Excellence Program for Advancing Early-Career Researcher Excellence through Leadership and Management PracticesGRANTR25GM143346 08/01/2021 – 07/31/2026 KEY PERSONNEL Alison Antes, PhD Principal Investigator, Director Tristan McIntosh, PhD Co-Director Joe Grailer, EdD, MFA, PMP Program Manager Elizabeth Bingheim, MPH, CPH Peer Mentoring Team (PMT) Coordinator Kerry Kornfeld, MD, PhD Program Faculty Sherree A.
- [Exploring the Need, Capacity, and Preferences for Faith-Based Healthcare Ethics Services](https://bioethicsresearch.org/projects/faith-based-healthcare-ethics-services/) - Projects: Exploring the Need, Capacity, and Preferences for Faith-Based Healthcare Ethics Services Exploring the Need, Capacity, and Preferences for Faith-Based Healthcare Ethics ServicesGRANTBF Foundation Gift KEY PERSONNEL James M. DuBois, DSc, PhD Principal Investigator Lauren Baker, PhD Co-Investigator Annie Friedrich, PhD, HEC-C Co-Investigator Erin Solomon, PhD Senior Staff Scientist Kari A. Baldwin, MSW Senior Project
- [Religion and Support for Genomic Healthcare: An Exploratory Study of the US Public and Faith Leaders](https://bioethicsresearch.org/projects/religion-and-support-for-genomic-healthcare/) - Projects: Religion and Support for Genomic Healthcare Religion and Support for Genomic Healthcare: An Exploratory Study of the US Public and Faith LeadersGRANTEthical, Legal and Social Implications (ELSI) Research (R01) Grant Number: 1R01HG012830-01 9/22/2022 – 6/30/2025 KEY PERSONNEL James M. DuBois, DSc, PhD Principal Investigator Lauren L. Baker, PhD Co-Investigator Jenine Harris, PhD Biostatistician Scott
- [Jessica Mozersky, PhD](https://bioethicsresearch.org/people/jessica-mozersky-phd/) - People: Mozersky JESSICA MOZERSKY, PHD JESSICA MOZERSKY, PHD Assistant Professor of Medicine 314-747-3534 JMOZERSKY@WUSTL.EDU JESSICA MOZERSKY, PhD, is an Assistant Professor of Medicine at Washington University’s Bioethics Research Center and a Faculty Scholar at the Institute for Public Health. Dr. Mozersky completed her PhD in Anthropology within the Institute for Human Genetics and Health at University College London,
- [Bryan Sisk, MD](https://bioethicsresearch.org/people/bryan-sisk-md/) - People: Sisk BRYAN A. SISK, MD BRYAN A. SISK, MD Assistant Professor of Medicine 314-273-9084 SISKB@WUSTL.EDU BRYAN SISK is an assistant professor in Department of Pediatrics’ Division of Pediatric Hematology and Oncology at Washington University School of Medicine, with a joint appointment in the Bioethics Research Center in the Department of Medicine. Sisk completed his
- [Faculty](https://bioethicsresearch.org/faculty/) - Faculty ALISON L. ANTES, PHD Director of Education, Associate Professor of Medicine314-362-6006 AANTES@WUSTL.EDU LAUREN L. BAKER, PHD Instructor of Medicine314-273-9995 BAKERLAUREN@WUSTL.EDU JOYCE BALLS-BERRY, PhD, MPE Faculty Affiliate314-362-5000 J.BALLS-BERRY@WUSTL.EDU JAMES DUBOIS, DSC, PHD Executive Director, Steven J. Bander Professor of Medical Ethics and Professionalism, Professor of Psychology314-747-2710 DUBOISJM@WUSTL.EDU MELODY GOODMAN, PhD, MS Faculty Affiliate212-992-5623 MELODY.GOODMAN@NYU.EDU TRISTAN
- [Responsible Conduct of Research Course (RCR)](https://bioethicsresearch.org/rcr-2/) - RESPONSIBLE CONDUCT OF RESEARCH COURSE (RCR)*The RCR course is designed to satisfy the National Institutes of Health Requirement for Instruction in the Responsible Conduct of Research. It may also be incorporated into plans to satisfy National Science Foundation RCR training requirements. ELIGIBILITY This course is sponsored by the Institute for Clinical and Translational Science (ICTS)
- [Sharing Qualitative Research Data](https://bioethicsresearch.org/projects/sharing-qualitative-research-data/) - Projects: Sharing Qualitative Data Sharing Qualitative Research Data: Identifying and Addressing Ethical and Practical BarriersGRANTNHGRI, R01 R01HG009351 08/17/2017 – 06/30/2023 KEY PERSONNEL James M. DuBois, DSc, PhD Principal Investigator Jessica Mozersky, PhD Co-Investigator Albert Lai, PhD Co-Investigator Aditi Gupta, PhD Co-Investigator Amy Pienta, PhD Co-Investigator Heidi Walsh, MPH, CHES Project Manager PROJECT WEBSITEDESCRIPTIONThis project will
- [Electronic Health Information: Risks, Benefits, Motivations and Barriers for Adolescents and Parents](https://bioethicsresearch.org/projects/adolescents-ehi/) - Projects: Electronic Health Information: Risks, Benefits, Motivations and Barriers for Adolescents and Parents Electronic Health Information: Risks, Benefits, Motivations and Barriers for Adolescents and ParentsGRANTGreenwall Make a Difference Grant 1/2022 – 12/2023 KEY PERSONNEL Bryan Sisk, MD Principal Investigator Alison Antes, PhD Co-Investigator James DuBois, DSc, PhD Co-Investigator PROJECT MANAGER Christine Bereitschaft Clinical Research Coordinator
- [Fostering Ethical Neurotechnology Academia-Industry Partnerships: A Stakeholder Engagement and Toolkit Development Project](https://bioethicsresearch.org/projects/ethical-neurotechnology-academia-industry-partnerships/) - Projects: Fostering Ethical Neurotechnology Academia-Industry Partnerships: A Stakeholder Engagement and Toolkit Development Project Fostering Ethical Neurotechnology Academia-Industry Partnerships: A Stakeholder Engagement and Toolkit Development ProjectGRANT1R01MH130519 6/1/2022-5/31/2026 KEY PERSONNEL Tristan McIntosh, PhD Principal Investigator James M. DuBois, DSc, PhD Co-Investigator Eric Leuthardt, MD Co-Investigator Joseph Culver, PhD Co-Investigator PROJECT MANAGERS Erin Solomon, PhD Senior Scientist Meredith
- [Electronic Health Information in Adolescent Oncology: Risks, Benefits, Motivations and Barriers](https://bioethicsresearch.org/projects/electronic-health-information-adolescent-oncology/) - Projects: Electronic Health Information in Adolescent Oncology: Risks, Benefits, Motivations and Barriers Electronic Health Information in Adolescent Oncology: Risks, Benefits, Motivations and BarriersGRANTConquer Cancer Foundation Career Development Award 07/2022 – 07/2025 KEY PERSONNEL Bryan Sisk, MD, MSCI Principal Investigator James M. DuBois, DSc, PhD Primary Mentor PROJECT MANAGER Christine Bereitschaft, MSW Clinical Research Coordinator DESCRIPTIONThe
- [Preventing Ethical Disasters in Medicine](https://bioethicsresearch.org/projects/preventing-ethical-disasters-in-medicine/) - Projects: Preventing Ethical Disasters Preventing Ethical Disasters in the Practice of MedicineGRANTNIA, R01 R01AG043527 06/01/2013 – 05/31/2018 KEY PERSONNEL James M. DuBois, DSc, PhD Principal Investigator Jessica Mozersky, PhD Co-Investigator Emily Anderson, PhD, MPH Co-Investigator John Chibnall, PhD Co-Investigator Heidi Walsh, MPH, CHES Project Manager DESCRIPTIONThe goal of this project is to examine individual and
- [Lab Leadership and Management Practices](https://bioethicsresearch.org/projects/lab-leadership-management-pratices/) - Projects: Lab Leadership and Management Practices Examining Lab Leadership and Management Practices That Foster A Climate For Research EthicsGRANTU.S. Office of Research Integrity ORIIR180042-01-00 07/2018-07/2019 KEY PERSONNEL Alison Antes, PhD Principal Investigator James DuBois, DSc, PhD Co-Investigator Tammy English, PhD Co-Investigator Erin Solomon, PhD Project Manager DESCRIPTIONThis study tested the hypothesis that the leadership and
- [Recruitment and Assessment PI Program](https://bioethicsresearch.org/projects/recruitment-and-assessment-pi-program/) - Projects: Recruitment and Assessment A Recruitment and Assessment Project for the Professionalism and Integrity in Research ProgramGRANTORI ORI2017000204 07/01/2017 – 06/30/2019 KEY PERSONNEL James M. DuBois, DSc, PhD Principal Investigator Alison Antes, PhD Co-Investigator Cynthia McKenna Project Manager DESCRIPTIONThe Professionalism and Integrity in Research Program (P.I. Program) was established in 2013 as the first remediation
- [Helping State Medical Boards Effectively Protect Patients](https://bioethicsresearch.org/projects/helping-state-medical-boards-effectively-protect-patients/) - Projects: Helping State Medical Boards Effectively Protect Patients Helping State Medical Boards Effectively Protect Patients by Identifying and Promulgating Promising Practices and Essential ResourcesGRANTThe Greenwall Foundation 07/01/2019 – 06/30/2021 KEY PERSONNEL Tristan McIntosh, PhD Principal Investigator James M. DuBois, DSc, PhD Co-Investigator Elizabeth Pendo, JD Co-Investigator Heidi Walsh, MPH, CHES Project Manager DESCRIPTIONThis project builds
- [Cultural Influences on Professional Decision-Making in Research](https://bioethicsresearch.org/projects/cultural-influences-pdm-research/) - Projects: Cultural Influences on Professional Decision-Making in Research Cultural Influences on Professional Decision-Making in ResearchGRANTNSF 3051-58655 09/01/2020-08/31/2023 KEY PERSONNEL Alison Antes, PhD Multi Principal Investigator Tristan McIntosh, PhD Multi Principal Investigator James DuBois, DSc, PhD Co-Investigator Erin Solomon, PhD Project Manager DESCRIPTIONResponsible conduct of research (RCR) education, when delivered effectively, can increase researchers’ knowledge, skills,
- [Developing Action Plans for Responding to Noncompliance](https://bioethicsresearch.org/projects/responding-to-noncompliance/) - Projects: Developing Action Plans for Responding to Noncompliance Developing Action Plans for Responding to NoncomplianceGRANTUL1TR002345 08/10/2020-02/28/2021 KEY PERSONNEL Alison Antes, PhD Project Co-Lead; Co-Investigator Tristan McIntosh, PhD Project Co-Lead; Co-Investigator James DuBois, PhD Co-Investigator Emily Schenk Project Manager DESCRIPTIONProtecting research participants is essential to the clinical research enterprise. When researchers engage in serious and continuing
- [Returning Research Results that Indicate Risk of Alzheimer Disease to Healthy Participants in Longitudinal Studies](https://bioethicsresearch.org/projects/rrr-risk-of-alzheimer-disease/) - Projects: Returning Research Results that Indicate Risk of Alzheimer Disease to Healthy Participants in Longitudinal Studies Returning Research Results that Indicate Risk of Alzheimer Disease to Healthy Participants in Longitudinal StudiesGRANTNIH/NIA R01 AG065234-01 02/2020 – 01/2025 KEY PERSONNEL Jessica Mozersky, PhD Multi Principal Investigator Sarah Hartz, MD PhD Multi Principal Investigator James DuBois, DSc, PhD
- [Communication Between Families and Medical Team in Pediatric Oncology](https://bioethicsresearch.org/projects/communication-between-families-and-medical-team-in-pediatric-oncology/) - Projects: Communication Between Families and Medical Team in Pediatric Oncology Communication Between Families and Medical Team in Pediatric OncologyGRANTConquer Cancer Foundation / American Society for Clinical Oncology Young Investigator Award 07/2019 – 12/2020 KEY PERSONNEL Bryan Sisk, MD, MSCI Principal Investigator James M. DuBois, DSc, PhD Primary Mentor Jennifer Mack, MD, MPH Co-Mentor DESCRIPTIONCommunication between
- [Learning Opportunities](https://bioethicsresearch.org/education/learning-opportunities/) - Learning OpportunitiesThe Bioethics Research Center (BRC) supports a variety of educational programming. Additionally, BRC staffs research ethics courses within the MSCI, MS Biostatistics and DBBS programs. Click on a link below to learn more about a specific program. Responsible Conduct of Research (RCR) xMentoring Post-doctoral Scholars xProfessionalism and Integrity in Research Program (PI Program)Train-the-Trainer ProgrammingNarrative
- [Program for Advancing Early-Career Researcher Excellence through Leadership](https://bioethicsresearch.org/projects/excellence-through-leadership/) - Projects: Program for Advancing Early-Career Researcher Excellence through Leadership Program for Advancing Early-Career Researcher Excellence through LeadershipGRANTNational Institute of General Medical Sciences R25GM143346 08/2021 – 07/2026 KEY PERSONNEL Alison Antes, PhD Principal Investigator Tristan McIntosh, PhD Co-investigator Sherree A. Wilson, PhD Program Faculty Kerry Kornfeld, MD, PhD Program Faculty Program Manager: Joe Grailer, EdD, MFA,
- [Resources](https://bioethicsresearch.org/resources/) - Resources: IBN Bioethics Network Do Something Case Studies ResourcesBRC OFFERS SEVERAL RESOURCES:@Washington UniversityGrant Applications Materials Description of BRC facilities Description of RCR Instruction Program Office of the Vice Chancellor for Research Resources Animal Studies Committee (ASC) Communicating for Health (ASC) Human Embryonic Stem Cell Research Oversight Committee (ESCRO) Human Research Protection Office (HRPO) Research Education
- [Welcome](https://bioethicsresearch.org/welcome/) - Welcome BRC Executive Director Welcome James M. DuBois, DSc, PhD Executive Director Bioethics Research Center Welcome to the website of the Bioethics Research Center (BRC)! Our faculty, fellows, and staff are social scientists and clinical investigators who study ethical, social, and professional issues that affect patients, researchers, and health care providers. We aim to do
- [Consultation and Collaboration](https://bioethicsresearch.org/research-services/consultation-collaboration/) - Research Services: Consultation & Collaboration CONSULTATION & COLLABORATIONBRC faculty have extensive expertise in social science methods used to study ethical, social, and professional issues in health care and research. Methods include: surveys, in-depth interviews, cognitive interviews, focus groups, content analysis, pre- and post-testing, Delphi consensus panels, and experimental designs. With funding from the Institute of
- [Education](https://bioethicsresearch.org/education/) - EducationEducational PrinciplesEducational MaterialsLearning Opportunities
- [Program for Advancing Early-Career Researcher Excellence through Leadership and Management Practices](https://bioethicsresearch.org/projects/early-career-researcher-excellence/) - Projects: Program for Advancing Early-Career Researcher Excellence through Leadership and Management Practices Program for Advancing Early-Career Researcher Excellence through Leadership and Management PracticesGRANTR25GM143346 08/01/2021 – 07/31/2026 KEY PERSONNEL Alison Antes, PhD Principal Investigator Kerry Kornfeld, MD, PhD Co-Investigator Tristan McIntosh, PhD Co-Investigator Sherree Wilson, PhD Co-Investigator Program Manager: Joe Grailer, EdD, MFA Education Program Manager:
- [Mentoring](https://bioethicsresearch.org/education/mentoring/) - POST-DOCTORAL TRAININGIn partnership with the Clinical Research Training Center, BRC faculty provide mentoring for scholars wishing to conduct research on bioethical and research ethics topics. Scholars are able to pursue original bioethics research within the Master of Science in Clinical Investigation program. For more information on the program, contact the Program Manager at brc@wustl.edu
- [Narrative Ethics Discussion Groups](https://bioethicsresearch.org/education/narrative-ethics-discussion-groups/) - NARRATIVE ETHICS DISCUSSION GROUPSFaculty and staff affiliated with the Bioethics Research Center (BRC) are available to facilitate narrative ethics discussion groups. In these groups, participants discuss stories published in the journal Narrative Inquiry in Bioethics (NIB). NIB publishes personal stories from patients, family members, and healthcare professionals on socially important topics in healthcare. For purposes
- [Educational Materials](https://bioethicsresearch.org/education/materials/) - Educational MaterialsThe BRC has developed many evidence-informed educational materials that are used in diverse programs. The materials on this page may be used at no cost for non-profit, educational purposes with proper attribution. SMART Decision-Making StrategiesLeadership & Management HabitsCase Studies Infographics for RCR Topics Narrative Education Discussion Guides
- [Educational Principles](https://bioethicsresearch.org/education/principles/) - Educational PrinciplesAll of the BRC educational programming follows several core principles: Practical. Focus on knowledge, as well as skills, habits, and resources.Active learning. Every individual is active in every session.Consolidate learning. Use infographics and reflection exercises to consolidate learning.Follow the data. Design education using the best available data, and evaluate outcomes.
- [Case Studies](https://bioethicsresearch.org/resources/case-studies/) - Resources: IBN Bioethics Network Do Something Case Studies RESEARCH ETHICS CASE STUDIESPlease click a study for more information, or use the search box to find specific studies. Search Case Studies: Animal Protocol Violations Putting Animal Subjects in Harm’s Way Researchers Pressured to Store Animal Subjects Technician Error Leads to Harm of Animal Subjects The Three
- [About](https://bioethicsresearch.org/rcr/rcrabout/) - Education: RCR Course RCR Course Calendar Mentoring P.I. Program Train the Trainer Narrative Ethics Discussion Groups About Topics This course consists of a series of 1-hour face-to-face seminars on diverse topics pertaining to RCR. Topics will include: Conflicts of Interest Human Subjects Protections Animal Welfare Research Misconduct Mentor/Mentee Responsibilities and Relationships Collaborative Research Responsible Authorship
- [Inconsistent Data Among Researchers](https://bioethicsresearch.org/resources/case-studies/inconsistent-data-among-researchers/) - Title: Inconsistent Data Among Researchers Author: Anji Wall Description: Inconsistent data compels an author to report suspected misconduct to the university. Keyword(s): Collaborative Research, Data Integrity, Reporting Suspected Misconduct Based On: (Shamoo & Resnik, 2003, p. 116) Case: Three investigators collaborated on a project, submitting a publication when it was complete. When reading the submitted version, one author found that
- [Infographics](https://bioethicsresearch.org/resources/infographics/) - Resources: IBN Bioethics Network Do Something Case Studies RESEARCH ETHICS INFOGRAPHICSPlease click a topic below to access a downloadable PDF. Animal Ethics Authorship and Publication Avoiding Plagiarism Conflicts of Interest Cultural Communications Data Management Diversity Faculty Reinforcement Genetics Human Subjects Mentoring Peer Review Research Misconduct Rigor and Reproducibility The Scientist as a Responsible Member of
- [SOPHIA JUI-AN PAN, PHD](https://bioethicsresearch.org/people/sophia-pan-phd/) - People: Pan SOPHIA JUI-AN PAN, PHD SOPHIA JUI-AN PAN, PHD Visiting Research Fellow 314-273-9115 SOPHIAJUI-AN.PAN@WUSTL.EDU SOPHIA JUI-AN PAN, PHD is a Visiting Research Fellow for the Bioethics Research Center at Washington University School of Medicine in the Division of General Medical Sciences. Pan completed her PhD in education (eLearning) at National Chiao Tung University, Taiwan.
- [Julia Ciurria, MB, BCh, BAO](https://bioethicsresearch.org/people/julia-ciurria/) - People: Ciurria JULIA CIURRIA, MB, BCh, BAO Julia Ciurria, MB BCH BAO Fellow 314-454-2558 JULIAC@WUSTL.EDU Julia Ciurria, MB, BCh, BAO is a clinical fellow in Pediatric Emergency Medicine at Washington University School of Medicine in St. Louis/St. Louis Children’s Hospital. She completed her medical training at the Royal College of Surgeons in Ireland and her
- [Elena Kraus, MD, PhD](https://bioethicsresearch.org/people/elena-kraus-md-phd/) - People: Kraus ELENA KRAUS, MD, PHD ELENA KRAUS, MD, PHD Fellow 314-454-8638 E.KRAUS@WUSTL.EDU ELENA KRAUS, MD, PHD is a fellow in Maternal Fetal Medicine at Saint Louis University School of Medicine. She completed her medical training and OB/GYN residency at Saint Louis University/SSM Saint Mary’s Hospital. During her PhD in Health Care Ethics, also at
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- [Withholding Study Purpose](https://bioethicsresearch.org/resources/case-studies/withholding-study-purpose/) - Title: Withholding Study Purpose Author: Emily E. Anderson and James M. DuBois (originally appeared on www.emhr.net) Description: A researcher wants to test an intervention to prevent child abuse among pregnant women in drug treatment programs but feels that revealing the true aim of the intervention may upset women already in difficult life circumstances (and limit enrollment). She asks her
- [Subjects at High-Risk for AIDS Used in AIDS Research](https://bioethicsresearch.org/resources/case-studies/subjects-at-high-risk-for-aids-used-in-aids-research/) - Title: Subjects at High-Risk for AIDS Used in AIDS Research Author: Anji Wall Description: AIDS vaccine research includes subjects who are deemed high-risk but have not contracted HIV/AIDS in randomized placebo-controlled study. Keyword(s): Fair Subjects Selection, International Research, Medically Vulnerable Persons, Post-Trial Access, Public Health Research, Randomized Controlled Trials (Placebo), Undervalued/Stigmatized Social Group Based On: (“AIDS Vaccine Test Halted
- [Research with Sex Addicts](https://bioethicsresearch.org/resources/case-studies/research-with-sex-addicts/) - Title: Research with Sex Addicts Author: James M. DuBois and Angela Dunn (originally appeared on www.emhr.net) Description: While studying sex addiction in women, a researcher learns that a participant is having sex with a minor. Keyword(s): Certificate of Confidentiality, Mandatory Reporting, Privacy and Confidentiality Case: The Powers Institute in Missouri is conducting a study on group therapy for women who are
- [Hepatitis Studies at the Willowbrook State School for Children](https://bioethicsresearch.org/resources/case-studies/hepatitis-studies-at-the-willowbrook-state-school-for-children/) - Title: Hepatitis Studies at the Willowbrook State School for Children Author: James M. DuBois (originally appeared on www.emhr.net) Description: From 1956 through 1971, residents at the Willowbrook State School for Children with Mental Retardation were infected with live hepatitis in order to develop a vaccine. Parents gave permission for their children to participate in this study, often because it
- [Ethical Issues in Longitudinal Research with At-Risk Children and Adolescents](https://bioethicsresearch.org/resources/case-studies/ethical-issues-in-longitudinal-research-with-at-risk-children-and-adolescents/) - Title: Ethical Issues in Longitudinal Research with At-Risk Children and Adolescents Author: Brian Schrag, ed., Research Ethics: Cases and Commentaries, Volume 1, Bloomington, Indiana: Association for Practical and Professional Ethics (originally appeared on www.emhr.net) Description: A researcher wants to conduct surveys and interviews with grade school children to study resilience and exposure to maladaptive environments. The school principal insists that
- [Threat of Lawsuit by Researchers Thwart Publishing of Article on Questionable Conduct](https://bioethicsresearch.org/resources/case-studies/threat-of-lawsuit-by-researchers-thwart-publishing-of-article-on-questionable-conduct/) - Title: Reviewer Fails to Disclose Conflict of Interest Author: Matthew Wroblewski and Tristan McIntosh Description: A researcher fails to disclose a conflict of interest prior to reviewing an article by an author that is his academic rival. Keyword(s): Conflict of Interest, Peer Review Case: After reviewing a manuscript, Adem, a reviewer at a prestigious medical
- [Reviewer Fails to Disclose Conflict of Interest](https://bioethicsresearch.org/resources/case-studies/reviewer-fails-to-disclose-conflict-of-interest/) - Title: Reviewer Fails to Disclose Conflict of Interest Author: Matthew Wroblewski and Tristan McIntosh Description: A researcher fails to disclose a conflict of interest prior to reviewing an article by an author that is his academic rival. Keyword(s): Conflict of Interest, Peer Review Case: After reviewing a manuscript, Adem, a reviewer at a prestigious medical
- [Procrastinating Reviewer](https://bioethicsresearch.org/resources/case-studies/procrastinating-reviewer/) - Title: Procrastinating Reviewer Author: Anji Wall Description: A procrastinating researcher must face a review board when he has not finished his assignment. Keyword(s): Funding, Peer Review Based On: (Shamoo & Resnik, 2003, p. 88) Case: A busy researcher is part of an NIH grant review committee. He was given one month to review 35 proposals. He was the primary reviewer on
- [Procrastinating Researcher Delegates Reviews to Trainee](https://bioethicsresearch.org/resources/case-studies/procrastinating-researcher-delegates-reviews-to-trainee/) - Title: Procrastinating Researcher Delegates Reviews to Trainee Author: Anji Wall Description: A researcher delegates some of his assigned grant applications to review to his trainee. This becomes apparent during the formal grant review committee meeting when the researcher fails to clarify some of the comments he submitted. Keyword(s): Funding, Mentor-Trainee Relationship, Peer Review Based On: (Shamoo & Resnik, 2003, p.
- [Double Jeopardy: Researcher’s Proposal Gets Rejected Twice](https://bioethicsresearch.org/resources/case-studies/double-jeopardy-researchers-proposal-gets-rejected-twice/) - Title: Double Jeopardy: Researcher’s Proposal Gets Rejected Twice Author: Anji Wall Description: A junior researcher’s luck turns bad when a promising proposal gets rejected on grounds that it had been rejected by another review board. Keyword(s): Funding, Peer Review Based On: (Shamoo & Resnik, 2003, p. 89) Case: Dr. Brown is a member of a grant review board for a large
- [Article Fails to Cite “Historical” Data](https://bioethicsresearch.org/resources/case-studies/article-fails-to-cite-historical-data-2/) - Title: Article Fails to Cite “Historical” Data Author: Anji Wall Description: A colleague discovers that no one conducted experiments on the control but rather a post-doctorate used historical data collected from previous studies as the control group. Keyword(s): Mentor-Trainee Relationship, Research Misconduct, Scientific Integrity Based On: (Shamoo & Resnik, 2003, p. 113) Case: A postdoctoral fellow published a paper on the
- [Pirated Idea for Research](https://bioethicsresearch.org/resources/case-studies/pirated-idea-for-research/) - Title: Pirated Idea for Research Author: Anji Wall Description: A reviewer from an NIH study section gives a trainee a research project based on a submission she reviews. Keyword(s): Intellectual Property, Mentor-Trainee Relationship, ORI, Peer Review, Plagiarism, Publishing Based On: (Shamoo & Resnik, 2003, p. 137) Case: While reviewing a grant proposal, a member of an NIH study section concluded
- [Does Carelessness Constitute Research Misconduct](https://bioethicsresearch.org/resources/case-studies/does-carelessness-constitute-research-misconduct/) - Title: Does Carelessness Constitute Research Misconduct Author: Anji Wall Description: A researcher throws out one-third of his subjects’ data. His trainee claims he falsified data; the university concludes that the researcher was careless. Keyword(s): Data Integrity, Falsification, Mentor-Trainee Relationship, Reporting Suspected Misconduct Based On: (Shamoo & Resnik, 2003, p. 117) Case: A graduate student complained to his university that his
- [The Follow-up Process: Obligations of Researchers to Anonymous Donors](https://bioethicsresearch.org/resources/case-studies/the-follow-up-process-obligations-of-researchers-to-anonymous-donors/) - Title: The Follow-up Process: Obligations of Researchers to Anonymous Donors Author: Adrienne Carpenter Description: A small monetary incentive entices people to donate genetic material anonymously for Cystic Fibrosis research and future unspecified research. This case study considers researchers’ duties to anonymous subjects. Keyword(s): Anonymity, Informed Consent, Fair Subject Selection, Privacy/Confidentiality, Beneficence Based On: (Brody, 1998) Case: Dr. Gallardo is conducting
- [Property, Privacy, and Public Health Obligations at Conflict in AIDS Research?](https://bioethicsresearch.org/resources/case-studies/property-privacy-and-public-health-obligations-at-conflict-in-aids-research/) - Title: Property, Privacy, and Public Health Obligations at Conflict in AIDS Research? Author: Adrienne Carpenter Description: Blood samples are used for an HIV surveillance program without consent. Keyword(s): Anonymity, Confidentiality, Epidemiology, Future Research on Stored Samples, Privacy, Public Health Stigmatization Based On: (Brody, 1998) Case: In an attempt to accurately predict the future prevalence of AIDS cases across different populations,
- [Paper or Plastic? From Paper Records to Electronic Database](https://bioethicsresearch.org/resources/case-studies/paper-or-plastic-from-paper-records-to-electronic-database/) - Title: Paper or Plastic? From Paper Records to Electronic Database Author: Brian Schrag, ed., 2002, Research Ethics: Cases and Commentaries, Volume 6, Bloomington, Indiana: Association for Practical and Professional Ethics (originally appeared on www.emhr.net) Description: Dr. Edwards has developed an electronic database to manage patient records. He is beginning to use the database as a research tool, but his patients
- [Property, Contract, Privacy Rights in the Human Body](https://bioethicsresearch.org/resources/case-studies/property-contract-privacy-rights-in-the-human-body/) - Title: Property, Contract, Privacy Rights in the Human Body Author: Adrienne Carpenter Description: Patients wish to remove donated samples after their doctor transfers from a university to another institution. Patients claim they have the right to withdraw participation at any time; the university counter-argues that the samples were a gift and thus university property. Keyword(s): Future Research on
- [Three Scenarios Concerning Anonymous Donations](https://bioethicsresearch.org/resources/case-studies/three-scenarios-concerning-anonymous-donations/) - Title: Three Scenarios Concerning Anonymous Donations Author: Adrienne Carpenter Description: This case study provides three scenarios concerning genetic research. Keyword(s): Anonymity, Future Research on Stored Samples, Preexisting Data, Privacy/Confidentiality, Waiver of Consent Based On: (Brody, 1998) Case: Scenario 1: Researchers plan to conduct a study on genetic samples that have already been stripped of identifiers, meaning that the samples
- [Research or Services?](https://bioethicsresearch.org/resources/case-studies/research-or-services/) - Title: Research or Services? Author: Gerald P. Koocher and Patricia C. Keith-Spiegel, Children, Ethics, and the Law: Professional Issues and Cases, University of Nebraska Press, 1990. (originally appeared on www.emhr.net) Description: Parents are told that if they enroll their babies in a research project, the babies will receive an EEG to look for signs of brain damage. Babies not
- [Favoritism in the Editing Room](https://bioethicsresearch.org/resources/case-studies/favoritism-in-the-editing-room/) - Title: Favoritism in the Editing Room Author: Anji Wall Description: An editor gives a researcher who is a friend an unfair advantage in the competitive world of publishing. Keyword(s): Conflict of Interest, Peer Review, Publishing Based On: (Shamoo & Resnik, 2003, p. 89) Case: A university faculty member is part of an editorial board for a well-received journal in her area
- [Banked Samples and HD Testing](https://bioethicsresearch.org/resources/case-studies/banked-samples-and-hd-testing-2/) - Title: Banked Samples and HD Testing Author: Dan Bustillos Description: A woman brushes off her most recent diagnosis, Huntington disease (HD), and resists her doctor’s recommendations to tell her family about the diagnosis. By not disclosing this information to her family, they would not know that they might want to get tested for HD. Prior to diagnosis, the
- [Reporting Adverse Effects](https://bioethicsresearch.org/resources/case-studies/reporting-adverse-effects/) - Title: Reporting Adverse Effects Author: Anji Wall Description: A researcher finds out that a drug she is promoting at a pharmacological conference may have serious adverse effects. Keyword(s): Conflict of Interest, Mentor-Trainee Relationship, Withholding Data Based On: (Shamoo & Resnik, 2003, p. 157) Case: A researcher at a prestigious university has a postdoctoral fellow who has been studying one specific aspect
- [Studying Vulnerable Individuals](https://bioethicsresearch.org/resources/case-studies/studying-vulnerable-individuals/) - Title: Studying Vulnerable Individuals Author: James M. DuBois and Angela Dunn (originally appeared on www.emhr.net) Description: Mark would like to conduct research for his dissertation at a group home for developmentally disabled persons where he has worked as a social worker for several years. Keyword(s): Dual Roles of Researchers, Identifying and Managing Conflicts of Interest Case: Mark is a social worker
- [Power for the People](https://bioethicsresearch.org/resources/case-studies/power-for-the-people/) - Title: Power for the People Author: William Timberlake, in Research Ethics: Cases and Materials, edited by Robin Levin Penslar, Indiana University Press, 1995 (originally appeared on www.emhr.net) Description: Professor A proposes to test the theory that black male criminals suffer from early childhood deprivation of attention by the male parent by comparing interview of black male ex-convicts with men that
- [Research Related Injuries in HIV Vaccine Study](https://bioethicsresearch.org/resources/case-studies/research-related-injuries-in-hiv-vaccine-study/) - Title: Research Related Injuries in HIV Vaccine Study Author: Anji Wall Description: Participants receiving a vaccination for HIV at a higher rate than those receiving the placebo. Keyword(s): Disclosure of Study Results, Medically Vulnerable Persons, Post-Trial Access, Public Health Research, Undervalued/Stigmatized Group or Condition, Randomized Controlled Trials (Placebo), Research Related injuries Case: A pharmaceutical company has developed and tested
- [Dilemmas of a Graduate Student Reporting Erroneous Data](https://bioethicsresearch.org/resources/case-studies/dilemmas-of-a-graduate-student-reporting-erroneous-data/) - Title: Dilemmas of a Graduate Student Reporting Erroneous Data Author: Anji Wall Description: A graduate student must decide to report or not report an error with published data and face the consequences. Keyword(s): Conflict of Interest, Data Integrity, Mentor-Trainee Relationship, Research Misconduct, Scientific Integrity, The Scientist as a Responsible Member of Society Based On: (Shamoo & Resnik, 2003, p.
- [Banked Samples and HD Testing](https://bioethicsresearch.org/resources/case-studies/banked-samples-and-hd-testing/) - Title: Banked Samples and HD Testing Author: Dan Bustillos Description: A woman brushes off her most recent diagnosis, Huntington disease (HD), and resists her doctor’s recommendations to tell her family about the diagnosis. By not disclosing this information to her family, they would not know that they might want to get tested for HD. Prior to diagnosis, the
- [Political Points](https://bioethicsresearch.org/resources/case-studies/political-points/) - Title: Political Points Author: Brian Schrag, ed., 2006, Research Ethics: Cases and Commentaries, Volume 3, Bloomington, Indiana: Association for Practical and Professional Ethics (originally appeared on www.emhr.net) Description: A researcher is unsure how to disseminate potentially controversial findings regarding needle exchange programs and HIV infection rates. Keyword(s): Other Study Design or Risk/Benefit Issues, Mental Health Disorders, The Scientist as a Responsible
- [Rules of Data-Sharing in Collaborative and Non-Collaborative Research](https://bioethicsresearch.org/resources/case-studies/rules-of-data-sharing-in-collaborative-and-non-collaborative-research/) - Title: Rules of Data-Sharing in Collaborative and Non-Collaborative Research Author: Adapted from a case written by Anji Wall Description: Co-investigators plan on patenting a genetic test and want to share data with both collaborators and non-collaborators. Keyword(s): Access to Data, Collaborative Research, Data-sharing, Data Ownership, Genetic Research, Patenting Based On: (Shamoo & Resnik, 2003, p.
- [Procrastinating Researcher Delegates Grant Reviews to Trainee](https://bioethicsresearch.org/resources/case-studies/procrastinating-researcher-delegates-grant-reviews-to-trainee/) - Title: Procrastinating Researcher Delegates Grant Reviews to Trainee Author: Adapted from a case written by Anji Wall Description: A researcher delays looking at grant application she has been assigned to review and asks his trainee to review some of the grant proposals. Keyword(s): Funding, Mentor-trainee Relationship, Peer Review Based On: (Shamoo & Resnik, 2003, p.
- [Robbing the Grave: Investigator Takes Ownership of Deceased Scholar’s Work](https://bioethicsresearch.org/resources/case-studies/robbing-the-grave-investigator-takes-ownership-of-deceased-scholars-work/) - Title: Robbing the Grave: Investigator Takes Ownership of Deceased Scholar’s Work Author: Adapted from a case written by Anji Wall Description: A new faculty member replaces the deceased mentor of a graduate student and takes credit for a manuscript prepared by the deceased. Keyword(s): Authorship, Collaboration, Mentor-trainee Relationship, Plagiarism, Research Misconduct Based On: (Shamoo &
- [Intellectual Rights Involving Multiple Institutions](https://bioethicsresearch.org/resources/case-studies/intellectual-rights-involving-multiple-institutions/) - Title: Intellectual Rights Involving Multiple Institutions Author: Adapted from a case written by Anji Wall Description: A graduate student obtains the same findings as his mentor’s collaborators who work at other universities. The graduate student’s mentor and mentor’s collaborator have both signed a Material Transfer Agreement. Keyword(s): Collaborative Research, Mentor-trainee Relationship, MTA Intellectual Property Based
- [Failed Patenting Negotiations in Collaborative Research](https://bioethicsresearch.org/resources/case-studies/failed-patenting-negotiations-in-collaborative-research/) - Title: Failed Patenting Negotiations in Collaborative Research Author: Adapted from a case written by Anji Wall Description: Researchers within a multi-institutional project did not devise a contract regarding intellectual property until it was too late. Keyword(s): Collaborative Research, Conflict of Interest, Intellectual Property Based On: (Shamoo & Resnik, 2003, pp. 136-137) Case: A university faculty
- [Eager Researcher Signs Away Intellectual Rights Despite University Refusal](https://bioethicsresearch.org/resources/case-studies/eager-researcher-signs-away-intellectual-rights-despite-university-refusal/) - Title: Eager Researcher Signs Away Intellectual Rights Despite University Refusal Author: Adapted from a case written by Anji Wall Description: A long-standing rapport with an independent company has status and financial perk for a university researcher. Before the company signs a contract with the researcher’s university, the company asks the researcher to waive his intellectual
- [Mistaken Claim of Authorship](https://bioethicsresearch.org/resources/case-studies/mistaken-claim-of-authorship/) - Title: Mistaken Claim of Authorship Author: Matthew Wroblewski and Tristan McIntosh Description: A researcher believes that they should be included as a co-author after critically reviewing a study proposal. Keyword(s): Authorship Case: Dr. Paris is asked to review a study proposal that Dr. Reagan has written. Dr. Paris reviews the study proposal, makes minor revisions,
- [Co-Authorship Conflicts](https://bioethicsresearch.org/resources/case-studies/co-authorship-conflicts/) - Title: Co-Authorship Conflicts Author: Adapted from a case written by Anji Wall Description: A graduate student discovers that the lab she once worked for plans to publish research in which she played an integral role; she argues for co-authorship. Keyword(s): Authorship, Mentor-trainee Relationship, Plagiarism, Research Misconduct Based On: (Shamoo & Resnick, 2003, p. 65) Case:
- [The Three Rs of Animal Research](https://bioethicsresearch.org/resources/case-studies/the-three-rs-of-animal-research/) - Title: The Three Rs of Animal Research Author: Matthew Wroblewski and Tristan McIntosh Description: Institutional Animal Care and Use Committee denies the approval of a study involving animal experimentation on the grounds that alternative methods are available. Keyword(s): Animal Subjects Research, Three Rs of Animal Research Based On: https://www.niehs.nih.gov/health/topics/science/sya-iccvam/index.cfm Case: Dr. Harper and Dr. Jesse
- [Technician Error Leads to Harm of Animal Subjects](https://bioethicsresearch.org/resources/case-studies/technician-error-leads-to-harm-of-animal-subjects/) - Title: Technician Error Leads to Harm of Animal Subjects Author: Matthew Wroblewski and Tristan McIntosh Description: Lab technician fails to properly secure animal enclosures resulting in a gory fight between two primates. Keyword(s): Animal Subjects Research, Sentience Based On: https://www.statepress.com/article/2018/09/spscience-new-complaint-questions-asus-animal-welfare-practices Case: No Monkey Left Behind, an animal rights group, submitted a formal complaint against Bohemian
- [Protocol Violations Putting Animal Subjects in Harm’s Way](https://bioethicsresearch.org/resources/case-studies/protocol-violations-putting-animal-subjects-in-harms-way/) - Title: Protocol Violations Putting Animal Subjects in Harm’s Way Author: Matthew Wroblewski and Tristan McIntosh Description: A junior researcher in charge of an experiment involving animal subjects allows several protocol violations to occur, resulting in public backlash. Keyword(s): Animal Subjects Research, Protocol Violation, Three Rs of Animal Research Based On: https://grants.nih.gov/grants/olaw/Guide-for-the-Care-and-Use-of-Laboratory-Animals.pdf; https://www.avma.org/KB/Policies/Documents/euthanasia.pdf Case: Several animal
- [Rainy Days for a Struggling Mentee](https://bioethicsresearch.org/resources/case-studies/rainy-days-for-a-struggling-mentee/) - Title: Rainy Days for a Struggling Mentee Author: Matthew Wroblewski and Tristan McIntosh Description: A postdoctoral researcher finds herself struggling to meet the unrealistic expectations of her mentor. Keyword(s): Mentor-Trainee Relationship Based On: https://ori.hhs.gov/case-two-bullied-or-mentored Case: A postdoctoral researcher, Rain, finds herself struggling to meet the expectations of her mentor, professor Grayson. Professor Grayson has extraordinarily
- [Selling Out? Making Deals with Other Institutions](https://bioethicsresearch.org/resources/case-studies/selling-out-making-deals-with-other-institutions/) - Title: Selling Out? Making Deals with Other Institutions Author: Adapted from a case written by Anji Wall Description: A research group offers a post-doctoral student an opportunity to collaborate with them and offers him an incentive to leave his current position. Keyword(s): Collaborative Research, Conflict of Interest, Data Ownership,Data-sharing, Mentor-trainee Relationship, Patenting, Research Misconduct, Patenting
- [Article Fails to Cite “Historical” Data](https://bioethicsresearch.org/resources/case-studies/article-fails-to-cite-historical-data/) - Title: Article Fails to Cite “Historical” Data Author: Adapted from a case written by Anji Wall Description: A department head received an anonymous complaint that a postdoctoral scholar published a paper with a new faculty mentor. The paper was published using old data collected from previous studies as a control group for a newly published
- [Inconsistent Findings Between Trainee and Researcher](https://bioethicsresearch.org/resources/case-studies/inconsistent-findings-betweentrainee-and-researcher/) - Title: Inconsistent Findings Between Trainee and Researcher Author: Adapted from a case written by Anji Wall Description: A graduate student felt that discrepancies between her and her mentor’s findings were due to inadequate testing on the mentor’s part; the mentor contends that the student’s inexperience is the issue. Keyword(s): Data Integrity, Falsification, Mentor-trainee Relationship Based
- [The Wild West of Animal Experimentation](https://bioethicsresearch.org/resources/case-studies/the-wild-west-of-animal-experimentation/) - Title: The Wild West of Animal Experimentation Author: Matthew Wroblewski and Tristan McIntosh Description: A principle investigator discovers that her coinvestigator has violated the Institutional Animal Care and Use Committee protocol. Keyword(s): Animal Subjects Research, Protocol Violation Based On: https://grants.nih.gov/grants/olaw/references/laba02v31n5.htm Case: Dr. Wen, a co-investigator on Dr. Maria’s IACUC protocol, thought that Dr. Maria had
- [Reporting Findings in a Timely Manner](https://bioethicsresearch.org/resources/case-studies/reporting-findings-in-a-timely-manner/) - Title: Reporting Findings in a Timely Manner Author: Matthew Wroblewski and Tristan McIntosh Description: A researcher on the cutting edge of science fails to publish impactful findings because they are more interested in securing future funding. Keyword(s): Publication Practices, The Scientist as Responsible Member of Society Case: Dr. Taylor was the principal investigator of a
- [Authorship and Intellectual Property](https://bioethicsresearch.org/resources/case-studies/authorship-and-intellectual-property/) - Title: Authorship and Intellectual Property Author: Matthew Wroblewski and Tristan McIntosh Description: A researcher is left feeling resentful after not having been made an author on a research paper even though the researcher provided the underlying idea for the project. Keyword(s): Authorship,Collaboration, Intellectual Property Case: Dr. Cao, the director of a computational biology lab, discovered
- [Dispute Over Primary Authorship](https://bioethicsresearch.org/resources/case-studies/dispute-over-primary-authorship/) - Title: Dispute Over Primary Authorship Author: Matthew Wroblewski and Tristan McIntosh Description: Three researchers put forth an equal amountof effort on a research project resulting in a dispute over who the primary author should be. Keyword(s): Authorship, Conflict Case: Three doctoral students, Mehida, Morgan, and Li, worked together on a research project focusedon exploring psychological
- [Researchers Pressured to Store Animal Subjects](https://bioethicsresearch.org/resources/case-studies/researchers-pressured-to-store-animal-subjects/) - Title: Researchers Pressured to Store Animal Subjects Author: Matthew Wroblewski and Tristan McIntosh Description: Geneticists working on groundbreaking research and funded by a large NIH grant fail to find a safe place to store their lab rats. Their haphazard solution may cost them. Keyword(s): Animal Subjects Research, IACUC Case: Geneticists at a major research university
- [Event Archive](https://bioethicsresearch.org/giving/bisno-fund/event-archive/) - Bisno Fund: Daniel Bisno David Bisno Event Archive Bisno Event ArchiveThe following individuals have served Dr. Daniel Bisno Ethics in Medicine Lecturers. For upcoming events and descriptions of past presentations, please see the Bisno Lecture Presentations page. Date Lecturer(s) March 6, 2020 Zubin Austin, BScPhm, MBA, MISc, PHD, FCAHS March 8, 2019 Jerry Menikoff, MD,
- [Bisno Fund](https://bioethicsresearch.org/giving/bisno-fund/) - Giving: Bander Professorship Bisno Fund BISNO FUND The Dr. Daniel Bisno Ethics in Medicine Fund was established to support diverse activities that raise awareness of ethical issues in medical practice and improve ethical decision making. Such activities include lectures, curriculum development, small group meetings, and publications sponsored by the BRC. At present, the fund supports
- [Giving](https://bioethicsresearch.org/giving/) - Giving: Bander Professorship Bisno Fund Giving OpportunitiesThe Mission of BRC is supported by philanthropic gifts as well as grants from federal agencies and foundations. BRC aims to expand its educational, research and service to health care workers and biomedical researchers. The work of BRC is supported by two generous endowment gifts: The Steven J. Bander
- [Do Something](https://bioethicsresearch.org/resources/do-something/) - Resources: IBN Bioethics Network Do Something Case Studies Do Something Rather than NothingA Message from the BRC Director A bout a year ago I had lunch with an African American colleague who left Washington University. She is a great researcher who decided to return to her home town. I asked her what she thought Washington
- [Research Services](https://bioethicsresearch.org/research-services/) - Research Services Consultation & Collaboration Testing Services Research ServicesBioethics Research Center (BRC) faculty and staff offer testing services, research consultations and collaborations. TESTING SERVICESBRC faculty have developed and validated numerous, original assessments and measures in the fields of bioethics and research ethics. BRC offers these tests to educators and researchers using two models: Fee-based full-service,
- [Barriers to COVID-19 Research](https://bioethicsresearch.org/barriers-to-covid-19-research/) - Barriers to COVID-19 Research A Survey of COVID-19 Researchers on Compliance Challenges If you do research on COVID-19, we are NIH-funded researchers at Washington University in St. Louis who want to learn more about your experiences. Specifically, we want to learn about your experiences addressing institutional, regulatory, and ethical requirements in COVID-19 research. This might
- [Bisno Lecture Presentations](https://bioethicsresearch.org/giving/bisno-fund/bisno-lecture-presentations/) - Bisno Fund: Daniel Bisno David Bisno Event Archive Bisno Lecture Presentations Bisno Lecture PresentationsPast LecturesZubin Austin, BScPhm, MBA, MISc, PHD, FCAHS, 2020 Bisno Lecture at Washington University School of Medicine Zubin Austin, BScPhm, MBA, MISc, PHD, FCAHS (professor and the Koffler Chair in Management at the Leslie Dan Faculty of Pharmacy and the Institute for
- [IBN Associates](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/) - IBN Bioethics Network: IBN Associates Interdisciplinary Bioethics Network (IBN) AssociatesClick the names below to learn more about areas of expertise, publications, and experience of IBN associates. Alison Antes, PhD Assistant Professor Erin Bakanas, PhD Professor of Medicine Kim Carmichael, MD, FACP Associate Professor Brian Carpenter, PhD Professor of Psychological & Brain Sciences James M. DuBois,
- [Data Sharing and Management for Impact](https://bioethicsresearch.org/rcr/rcr-course-calendar/data-sharing-management-for-impact/) - RCR EventsData Sharing and Management for Impact Wednesday, May 20, 2020 12:00 PM to 1:00 PM WUSTL School of Medicine, Taylor Ave. Building General Medical Sciences (GMS), Classrooms A&B, 1st floor SPEAKER: Christopher Sorensen, PhD, MSCI, MS Dr. Christopher Sorensen is a Senior Support Scientist, Washington University Bernard Becker Medical Library. This event satisfies Responsible
- [Tristan McIntosh, PhD](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/tristan-mcintosh/) - Tristan McIntosh, PhDInstructor in Medicine Department of Medicine Bioethics Research Center, General Medical Sciences t.mcintosh@wustl.edu AREAS OF EXPERTISEI am a faculty member in the Bioethics Research Center. My areas of expertise include ethical decision making, ethics training, and responding to misconduct and wrongdoing. I also conduct research on ethical issues in organ transplantation and have
- [Jessica Mozersky, PhD](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/jessica-mozersky/) - Jessica Mozersky, PhDAssistant Professor of Medicine Department of Medicine Bioethics Research Center, General Medical Sciences jmozersky@wustl.edu AREAS OF EXPERTISEI am a faculty member and co-investigator in the Bioethics Research Center. My research explores the ethical and social implications of genetics and new biomedical technologies such as neuroimaging. I am currently Co-investigator or Site Principal Investigator
- [Sophia Jui-An Pan, PhD](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/sophia-jui-an-pan/) - Sophia Jui-An PanVisiting Research Fellow Department of Medicine Division of General Medical Sciences sophiajui-an.pan@wustl.edu AREAS OF EXPERTISEI am a researcher and instructor in the field of research integrity and ethics. My current research foci include three areas: (1) research integrity and ethics as they relate to knowledge, misconceptions, and attitudes that are prevalent among graduate
- [Erin Bakanas, PhD](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/erin-bakanas/) - Erin Bakanas, PhDProfessor of Medicine Department of Medicine Division of Palliative Medicine erin.bakanas@wustl.edu EXPERIENCE Professor of Medicine, Division of General Internal Medicine, Saint Louis University School of Medicine, 1993-2018 Chair, Saint Louis University Hospital Ethics Committee, June 2003-June 2018 Director, Bander Center for Medical Business Ethics Fellows Program 2008-2018 Director, Death and Dying course for
- [Ethical Issues Arising in Research with Minorities](https://bioethicsresearch.org/rcr/rcr-course-calendar/ethical-issues-arising-in-research-with-minorities/) - RCR EventsEthical Issues Arising in Research with Minorities Wednesday, April 22, 2020 12:00 PM to 1:00 PM WUSTL School of Medicine, Taylor Ave. Building General Medical Sciences (GMS), Classrooms A&B, 1st floor Speaker: Ana Baumann, PhD, MA Dr. Ana Baumann is a Research Assistant Professor at the Brown School. This event satisfies Responsible Conduct of Research
- [Peer Review:  Challenges and Realities of Constructive Criticism](https://bioethicsresearch.org/rcr/rcr-course-calendar/peer-review-constructive-criticism/) - RCR EventsPeer Review: Challenges and Realities of Constructive Criticism Wednesday, March 18, 2020 12:00 PM to 1:00 PM WUSTL School of Medicine, Taylor Ave. Building General Medical Sciences (GMS), Classrooms A&B, 1st floor Speaker: Leonard Maggi, PhD Dr. Leonard Maggi is an Assistant Professor Department of Medicine in the Oncology Division. This event satisfies Responsible Conduct of Research
- [Conflicts of Interest in Research:  Protecting Integrity While Pursuing Beneficial Relationships](https://bioethicsresearch.org/rcr/rcr-course-calendar/protecting-integrity-while-pursuing-beneficial-relationships/) - RCR EventsConflicts of Interest in Research: Protecting Integrity While Pursuing Beneficial Relationships Wednesday, June 3, 2020 12:00 PM to 1:00 PM WUSTL School of Medicine, Taylor Ave. Building General Medical Sciences (GMS), Classrooms A&B, 1st floor Speaker: Timothy Rubbelke, PhD Dr. Timothy Rubbelke is a Research Compliance Specialist in the Office of Research Ethics and Integrity. This
- [Issues to Consider in Human Subjects Research](https://bioethicsresearch.org/rcr/rcr-course-calendar/human-subjects-research/) - RCR EventsIssues to Consider in Human Subjects Research Wednesday, February 12, 2020 12:00 PM to 1:00 PM WUSTL School of Medicine, Taylor Avenue Building (TAB) General Medical Sciences (GMS), Classrooms A&B, 1st floor SPEAKER: Stephanie Cargill, PhD Dr. Stephanie Cargill is an Associate Professor of Health Care Ethics at St. Louis University. This event satisfies Responsible
- [Responsible Animal Care and Use in Research](https://bioethicsresearch.org/rcr/rcr-course-calendar/responsible-animal-care-use-research/) - RCR EventsChallenges and Strategies for Responsible Animal Care and Use in Research Wednesday, October 16, 2019 12:00 PM to 1:00 PM WUSTL School of Medicine, Taylor Ave. Building General Medical Sciences (GMS), Classrooms A&B, 1st floor SPEAKER: Joe Dougherty, PhD. Dr. Joe Dougherty is an Assistant Professor of Genetics, Washington University Division of Biology and Biomedical Sciences. This event satisfies
- [Environmental and Societal Impacts](https://bioethicsresearch.org/rcr/rcr-course-calendar/conflicts-of-interest-2/) - RCR EventsEnvironmental and Societal Impacts of Scientific Research: Scientist as Responsible Members of SocietyWednesday, July 17, 2019 12:00 PM to 1:00 PM WUSTL School of Medicine, Taylor Avenue Building (TAB) General Medical Sciences (GMS), Classrooms A&B, 1st floor SPEAKER: Stephanie Solomon Cargill, PhD Dr. Stephanie Solomon Cargill is Associate Professor of Health Care Ethics; Associate
- [Successful Mentoring Relationships in Scientific Research](https://bioethicsresearch.org/rcr/rcr-course-calendar/successful-mentoring-relationships-scientific-research/) - RCR EventsWill this Relationship Last? Successful Mentoring Relationships in Scientific ResearchWednesday, November 20, 2019 12:00 PM to 1:00 PM WUSTL School of Medicine, Taylor Ave. Building General Medical Sciences (GMS), Classrooms A&B, 1st floor SPEAKER: Tammy English, PhD. Dr. Tammy English is an Assistant Professor Psychological & Brain Sciences, The Psychological & Brain Sciences Department at Washington University.
- [SMART Strategies for Professional Decision Making in Research Jan 2020](https://bioethicsresearch.org/rcr/rcr-course-calendar/smart-strategies-professional-decision-making-research-2/) - RCR EventsSMART Strategies for Professional Decision Making in Research (2-hour Required Foundations Session) Wednesday, January 29, 2020 12:00 PM to 2:00 PM WUSTL School of Medicine, Taylor Ave. Building General Medical Sciences (GMS), Classrooms A&B, 1st floor **This is the 2 Hour Required Foundations Course — Bring your lunch** SPEAKER: Alison Antes, PhD. Dr. Alison
- [SMART Strategies for Professional Decision Making in Research Aug 2019](https://bioethicsresearch.org/rcr/rcr-course-calendar/smart-strategies-professional-decision-making-research/) - RCR EventsSMART Strategies for Professional Decision Making in Research (2-hour Required Foundations Session) Thursday, August 8, 2019 12:00 PM to 2:00 PM WUSTL School of Medicine, Taylor Ave. Building General Medical Sciences (GMS), Classrooms A&B, 1st floor **This is the 2 Hour Required Foundations Course — Bring your lunch** SPEAKER: Alison Antes, PhD. Dr. Alison
- [Scientists as Responsible Members of Society](https://bioethicsresearch.org/rcr/rcr-course-calendar/scientists-responsible-members-society/) - RCR EventsScientists as Responsible Members of SocietyTuesday, July 17, 2018 12:00 PM to 1:00 PM WUSTL School of Medicine, Taylor Ave. Building General Medical Sciences (GMS), Classrooms A&B, 1st floor Speaker: Stephanie Solomon Cargill, PhD. Dr. Stephanie Solomon Cargill is an Associate professor at the Albert Gnaegi Center for Health Care Ethics at Saint Louis University. This event satisfies
- [Responding to Suspected Wrongdoing in Research](https://bioethicsresearch.org/rcr/rcr-course-calendar/responding-suspected-wrongdoing-research/) - RCR EventsResponding to Suspected Wrongdoing in ResearchTuesday, December 3, 2019 12:00 PM to 1:00 PM WUSTL School of Medicine, Taylor Ave. Building General Medical Sciences (GMS), Classrooms A&B, 1st floor SPEAKER: James DuBois, DSc, PhD. Dr. James DuBois is the Steven J. Bander Professor of Medical Ethics and Professionalism, Professor of Psychology, and Director of the
- [Peer Review: Challenges and Realities of Constructive Criticism](https://bioethicsresearch.org/rcr/rcr-course-calendar/peer-review/) - RCR EventsPeer Review: Challenges and Realities of Constructive CriticismWednesday, March 20, 2019 12:00 PM to 1:00 PM WUSTL School of Medicine, Taylor Avenue Building (TAB) General Medical Sciences (GMS), Classrooms A&B, 1st floor SPEAKER: Leonard Maggi, PhD Leonard Maggi, PhD, is Assistant Professor, Department of Medicine, Molecular Oncology, Washington University in St. Louis School of
- [Lessons for the Debate about Reproducibility in Science](https://bioethicsresearch.org/rcr/rcr-course-calendar/reproducibility-in-science/) - RCR EventsLessons for the Debate about Reproducibility in Science—Lesson One: Researchers are HumanTuesday, October 29, 2019 12:00 PM to 1:00 PM WUSTL School of Medicine, Taylor Ave. Building General Medical Sciences (GMS), Classrooms A&B, 1st floor SPEAKER: Leonard Maggi, PhD. Dr. Leonard Maggi is Assistant Professor Department of Medicine, Oncology Division. This event satisfies Responsible Conduct of Research
- [Issues to Consider in Human Subjects Research](https://bioethicsresearch.org/rcr/rcr-course-calendar/issues-consider-human-subjects-research/) - RCR EventsIssues to Consider in Human Subjects Research Wednesday, February 13, 2019 12:00 PM to 1:00 PM WUSTL School of Medicine, Taylor Ave. Building General Medical Sciences (GMS), Classrooms A&B, 1st floor Speaker: Stephanie Solomon Cargill, PhD. Dr. Stephanie Solomon Cargill is an Associate professor at the Albert Gnaegi Center for Health Care Ethics at Saint Louis University. This
- [Exploring Dilemmas in Authorship and Publishing](https://bioethicsresearch.org/rcr/rcr-course-calendar/exploring-dilemmas-authorship-publishing/) - RCR EventsExploring Dilemmas in Authorship and PublishingWednesday, September 18, 2019 12:00 PM to 1:00 PM WUSTL School of Medicine, Taylor Ave. Building General Medical Sciences (GMS), Classrooms A&B, 1st floor SPEAKER: Jessica Mozersky, PhD Dr. Jessica Mozersky is Assistant Professor of Medicine, Center for Clinical and Research Ethics at Washington University. This event satisfies Responsible
- [Ethical Issues Arising in Genetic Research](https://bioethicsresearch.org/rcr/rcr-course-calendar/ethical-issues-genetic-research/) - RCR EventsEthical Issues Arising in Genetic Research Wednesday, December 18, 2019 12:00 PM to 1:00 PM WUSTL School of Medicine, Taylor Ave. Building General Medical Sciences (GMS), Classrooms A&B, 1st floor SPEAKER: Jessica Mozersky, PhD Dr. Jessica Mozersky is Assistant Professor of Medicine, Center for Clinical and Research Ethics at Washington University. This event satisfies
- [Data Sharing and Management](https://bioethicsresearch.org/rcr/rcr-course-calendar/data-sharing-management/) - RCR EventsData Sharing and Management for ImpactThursday, May 30, 2019 12:00 PM to 1:00 PM WUSTL School of Medicine, Taylor Avenue Building (TAB) General Medical Sciences (GMS), Classrooms A&B, 1st floor SPEAKER: Albert Lai, PhD Albert Lai, PhD, is Associate Professor, General Medical Science, School of Medicine; and Chief Research Information Officer, School of Medicine.
- [Cross-Cultural Communication in Labs](https://bioethicsresearch.org/rcr/rcr-course-calendar/cross-cultural-communication/) - RCR EventsCross-Cultural Communication in LabsThursday, April 18, 2019 12:00 PM to 1:00 PM WUSTL School of Medicine, Taylor Avenue Building (TAB) General Medical Sciences (GMS), Classrooms A&B, 1st floor SPEAKER: Karen Schwelle, MA, MA Karen Schwelle, MA, MA is the Director of the Office for International Students and Scholars. This event satisfies Responsible Conduct of
- [Conflicts of Interest](https://bioethicsresearch.org/rcr/rcr-course-calendar/conflicts-of-interest/) - RCR EventsConflicts of Interest in Research: Protecting Integrity While Pursuing Beneficial Relationships Friday, June 21, 2019 12:00 PM to 1:00 PM WUSTL School of Medicine, Taylor Avenue Building (TAB) General Medical Sciences (GMS), Classrooms A&B, 1st floor SPEAKER: Timothy Rubbelke, PhD Tim Rubbelke, PhD is an adjunct professor of Ethics at St. Louis University. This
- [Daniel Bisno](https://bioethicsresearch.org/giving/bisno-fund/daniel-bisno/) - Giving: Bander Professorship Bisno Fund The Life of Daniel BisnoDaniel Bisno was born May 12, 1906 in Kenosha, Wisconsin, a small blue collar, working class town about 75 miles north of Chicago on the shore of Lake Michigan. Both of his parents had escaped from Russia in 1880, penniless and uneducated but speaking five languages.
- [David Bisno](https://bioethicsresearch.org/giving/bisno-fund/david-bisno/) - Giving: Bander Professorship Bisno Fund David BisnoDavid Bisno grew up in University City, earned his B.A. from Harvard College and then returned to St. Louis for medical school and ophthalmology residency at Washington University. After two years in the Navy in Pensacola teaching ophthalmology to the flight surgeons headed for Viet Nam, David enjoyed 20
- [Quality of Communication in Pediatric Oncology](https://bioethicsresearch.org/projects/qcom/) - Projects: Quality of Communication in Pediatric Oncology QCOM: Quality of Communication in Pediatric Oncology – Advancing Understanding and Measurement of Communication Functions and QualityGRANTNIH Loan Repayment Program (LRP) NCATS UL1 TR002345 07/2018 – 06/2020 KEY PERSONNEL Bryan A. Sisk, MD Principal Investigator James M. DuBois, DSc, PhD Project Primary Mentor and Co-Investigator Jennifer W. Mack,
- [IBN Bioethics Network](https://bioethicsresearch.org/resources/bioethicsnetwork/) - Resources: IBN Bioethics Network Do Something IBN BIOETHICS NETWORKThe IBN was established to: Raise the visibility of work at WUSTL in the areas of bioethics, clinical ethics, and research ethics Foster scholarly collaborations and the identification of experts who might serve as speakers or consultants Grow expertise in bioethics and research ethics by hosting train-the
- [Fostering Integrity and Societal Impact in Genomics](https://bioethicsresearch.org/projects/integrity-and-societal-impact-in-genomics/) - Projects: Fostering Integrity Fostering Integrity and Societal Impact in Genomics Through Management and Leadership PracticesGRANTNHGRI, K01 K01HG008990 07/01/2016 – 06/30/2021 KEY PERSONNEL Alison L. Antes, PhD Principal Investigator James M. DuBois, DSc, PhD Mentor PROJECT WEBSITEDESCRIPTIONThe goal of this project is to understand the leadership and management practices essential to leading scientific research with integrity.
- [Good Clinical Practice](https://bioethicsresearch.org/projects/gcp/) - Projects: Good Clinical Practice How do Clinical Research Coordinators Gain Knowledge of Good Clinical Practice?GRANTWashington University CTSA UL1TR000448 9/17/07 – 5/31/18 KEY PERSONNEL James M. DuBois, DSc, PhD Principal Investigator Jessica Mozersky, PhD Co-investigator Alison L. Antes, PhD Co-investigator DESCRIPTIONThe purpose of this study is to examine how clinical research coordinators (CRCs) gain knowledge of
- [Bioethics](https://bioethicsresearch.org/resources/bioethics-resources/) - Resources: @Washington University Bioethics Research Ethics BIOETHICS RESOURCESBioethics Professional Associations American Society for Bioethics and Humanities International Association of Bioethics Selected Bioethics Blogs Bioethics Forum Bioethics.net blog Bioethics Research Resources Bioethics Research Library at Georgetown National Library of Medicine Bioethics Resources Bioethics Journals Bioethics Journals List at Georgetown Library Bioethics Training Programs Graduate Programs in
- [@Washington University](https://bioethicsresearch.org/resources/washington-university-resources/) - Resources: @Washington University Bioethics Research Ethics WASHINGTON UNIVERSITY RESOURCES Grant Applications Materials Description of CCRE facilities Description of RCR Instruction Program Office of the Vice Chancellor for Research Resources Animal Studies Committee (ASC) Communicating for Health (ASC) Human Embryonic Stem Cell Research Oversight Committee (ESCRO) Human Research Protection Office (HRPO) Research Education & Information Research Conflicts
- [Bander Professorship](https://bioethicsresearch.org/giving/bander-professorship/) - Giving: Bander Professorship Bisno Fund BANDER PROFESSORSHIPT he Steven J. Bander Professorship of Medical Ethics and Professionalism was established through a generous gift from the BF Charitable Foundation to Washington University School of Medicine in St. Louis. In March of 2015, Dr. James M DuBois was installed as the inaugural chair holder. Chancellor Mark Wrighton
- [About](https://bioethicsresearch.org/about/) - About About the BRCThe Bioethics Research Center (BRC) is a unit of the Division of General and Medical Sciences in the Washington University School of Medicine in St. Louis. The BRC was initially established in 2008 as a core of the Institute for Clinical and Translational Science with a focus on clinical research ethics and
- [Uncontrolled Donation after Circulatory Determination of Death](https://bioethicsresearch.org/projects/uncontrolled-donation-after-circulatory-determination-of-death/) - Projects: Uncontrolled Donation after Circulatory Determination of Death Lay and Professional Attitudes Toward Uncontrolled Donation after Circulatory Determination of Death: A Pilot StudyGRANTGreenwall Foundation Bioethics Program 07/01/07 – 06/30/07 KEY PERSONNEL James M. DuBois, DSc, PhD Principal Investigator Amy Waterman, PhD Co-Investigator Ana Iltis, PhD Co-Investigator DESCRIPTIONThis project investigated public perception and understanding of key
- [Role of Culture and Experience](https://bioethicsresearch.org/projects/role-of-culture-and-experience/) - Projects: Role of Culture and Experience The Role of Culture and Experience in the Perception of Research Regulations, Norms and ValuesGRANTOffice of Research Integrity, HHS ORI-14-001-018712 08/01/2014 – 7/31/2016 KEY PERSONNEL James M. DuBois, DSc, PhD Principal Investigator Alison Antes, PhD Co-Investigator DESCRIPTIONResearchers’ professional decision-making and research integrity requires more than just knowing and following
- [Mental Health Research Ethics](https://bioethicsresearch.org/projects/mental-health-research-ethics/) - Projects: Mental Health Research Ethics Best Practices in Mental Health Research Ethics Conference SeriesGRANTNIH National Institute of Mental Health 1R13MH079690 07/01/2007 – 04/30/2011 KEY PERSONNELJames M. DuBois, DSc, PhD Principal Investigator DESCRIPTIONMental health research frequently raises concerns about the decisional capacity of participants, risks—particularly when studies involve washout, placebo controls, or suicidality as an outcome—and
- [Environmental Factors Predictive of Misbehavior](https://bioethicsresearch.org/projects/environmental-factors-predictive-of-misbehavior/) - Projects: Environmental Factors Predictive of Misbehavior Environmental Factors Predictive of Misbehavior in Collaborative Health ResearchGRANTNIH National Center for Research Resources 1R21RR026313 09/25/2009 – 08/30/2011 KEY PERSONNEL James M. DuBois, DSc, PhD Principal Investigator Emily Anderson, PhD, MPH Co-Investigator John Chibnall, PhD Co-Investigator DESCRIPTIONMisbehavior in health research—such as fabricating research data, fraudulent billing, or withholding information
- [Validating Outcome Measures](https://bioethicsresearch.org/projects/validating-outcome-measures/) - Projects: Validating Outcome Measures Validating Outcome Measures for Remediation of Research WrongdoingGRANTOffice of Research Integrity, HHS ORIIR130002-01-00 09/01/2013 – 08/31/2015 KEY PERSONNEL James M. DuBois, DSc, PhD Principal Investigator Alison Antes, PhD Co-Investigator John Chibnall, PhD Co-Investigator Raymond Tait, PhD Co-Investigator Jillon Vander Wal, PhD Co-Investigator DESCRIPTIONThis project developed and validated two new assessment measures,
- [CCRE Event](https://bioethicsresearch.org/event/) - Evidence-Based Teaching for Researchers SPEAKER: Kimberly Tanner, PhD CO-SPONSORED BY: Center for Clinical & Research Ethics | Clinical Research Training Center | The Division of Biology & Biomedical Sciences | Office of Education, School of Medicine Please join us for the following two events: EVENT #1 9:00am-10:00am Plenary Lecture: This free lecture is open to everyone
- [Research Ethics](https://bioethicsresearch.org/resources/research-ethics/) - Resources: @Washington University Bioethics Research Ethics Research Ethics ResourcesGeneral Research Codes of Ethics Belmont ReportNuremberg Code World Medical Association, Declaration of Helsinki Responsible Conduct of Research Resources WUSTL Center for Clinical and Research EthicsNational Ethics CenterThe US Office of Research IntegrityNIH Office of the Director, RCR ResourcesNational Postdoctoral Association, RCR for Postdocs
- [Jonathan Mullin](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/jonathan-mullin/) - Jonathan Mullin, MDPediatric Hematology/Oncology Fellow siskb@wustl.edu AREAS OF EXPERTISEI am particularly interested in the effect of communication on the decision-making and consent processes in pediatrics. PUBLICATIONS & EXPERIENCE Sisk, B.A., Kang, T., and Mack, J. “Sources of Parental Hope in Pediatric Oncology.” Pediatrics. 2017, e20172241. (Epub Ahed of Print). PMID: 29208726 Sisk, B.A. and Malone,
- [Joan Rosenbaum](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/joan-rosenbaum/) - Joan Rosenbaum, MA, MDProfessor of Pediatrics, Washington University School of Medicine Director, Pediatric Palliative, St Louis Childrens Hospital Medical Director, BJCWINGS Hospice and Supportive Care Co-chair, St. Louis Children’s Hospital Ethics Committee rosenbaum@kids.wustl.edu AREAS OF EXPERTISEBoard certification in Pediatrics, Perinatal and Neonatal Medicine, and Hospice and Palliiative Medicine. PUBLICATIONS & EXPERIENCE Remy AE, Remy KE,
- [Kim A. Carmichael](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/kim-a-carmichael/) - Kim A. Carmichael, MD, FACPAssociate Professor of Medicine Department of Internal Medicine Division of Endocrinology, Metabolism and Lipid Research Co-Chair, Education Subcommittee, Barnes-Jewish Hospital Chair, Practicum in Medical Ethics, Barnes-Jewish Hospital carmichaelk@wustl.edu AREAS OF EXPERTISEI am a member of the Ethics Committee at Barnes-Jewish Hospital and currently serve as the co-Chair of its Education Subcommittee.
- [Mary C. Politi](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/mary-c-politi/) - Mary C. Politi, PhDMPoliti@WUSTL.EDU Web bio AREAS OF EXPERTISEDr. Politi is a health psychologist and Associate Professor in the Division of Public Health Sciences at Washington University School of Medicine. Her primary research interests include health communication and shared decision making. Her work helps patients and the public understand health information, explore what is important
- [Komo Gursahani](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/komo-gursahani/) - Komo Gursahani, MD, MBA Associate Professor of Emergency Medicine; Assistant Chief of Emergency Medicine, BJH/WUSM kgursahani@wustl.edu Web Bio AREAS OF EXPERTISE Health systems science & medical education Business ethics of medical practice and research Quality improvement, clinical operations, physician payment systems, and health care access and reform Clinical informatics Entrepreneurship PUBLICATIONS & EXPERIENCEhttp://emed.wustl.edu/EmedFaculty/Gursahani_K
- [Ann Gronowski](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/ann-gronowski/) - Ann Gronowski, PhDProfessor Pathology & Immunology and Obstetrics & Gynecology Gronowski@wustl.edu Web Bio AREAS OF EXPERTISEDr. Gronowski is interested in bioethics as it relates to clinical laboratory testing, biobanking, human research, and error disclosure. She is also interested medical professionalism. PUBLICATIONS & EXPERIENCE Crone KG, Muraski MB, Skeel JD, Love-Gregory L, Ladenson JH, Gronowski AM.
- [Brian Carpenter](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/brian-carpenter/) - Brian Carpenter, PhDProfessor of Psychological & Brain Sciences bcarpenter@wustl.edu AREAS OF EXPERTISEI direct the Clinical Geropsychology laboratory in the Department of Psychological and Brain Sciences. Our research focuses on family relationships later in life, collaboration between older adults and their healthcare providers, end-of-life care, and dementia health literacy. PUBLICATIONS & EXPERIENCE Carpenter, B.D., & McDarby,
- [Sarah Fowler Dixon](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/sarah-fowler-dixon/) - Sarah Fowler Dixon, PhD, CIPEducation Specialist, Washington University Human Research Protection Office; Instructor, University College Clinical Research Management Program sfowler-dixon@wustl.edu AREAS OF EXPERTISEI have worked in human subjects protections since 2001, writing guidelines, http://hrpohome.wustl.edu/, developing training and other educational materials http://digitalcommons.wustl.edu/hrpo/ . I have been an instructor in the Clinical Research Management (CRM) since its
- [Stephan S. Lefrak](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/stephan-s-lefrak/) - Stephan S. Lefrak, MDProfessor Emeritus Director of the Humanities Program in Medicine slefrak@wustl.edu AREAS OF EXPERTISEMy major interest at the present time is the Philosophy of Medicine. I am speaking of epistemology, ontology etc. Axiology, which I have spent a great deal of time with, I find intriguing now only as necessary to teach about
- [Bryan Sisk](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/bryan-sisk/) - Bryan Sisk, MDPediatric Hematology/Oncology Fellow siskb@wustl.edu AREAS OF EXPERTISEI am particularly interested in the effect of communication on the decision-making and consent processes in pediatrics. PUBLICATIONS & EXPERIENCE Sisk, B.A., Kang, T., and Mack, J. “Sources of Parental Hope in Pediatric Oncology.” Pediatrics. 2017, e20172241. (Epub Ahed of Print). PMID: 29208726 Sisk, B.A. and Malone,
- [Jay R. Malone](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/jay-r-malone/) - Jay R. Malone, MD, MSInstructor in Pediatrics Critical Care Medicine Malone_J@kids.wustl.edu Web Bio AREAS OF EXPERTISEI am a pediatric critical care fellow, and a PhD student in Health Care Ethics. I obtained my MS in Health Care Ethics from Creighton University. My research focus is in pediatric critical care, specifically issues of surrogate decision making
- [Facilities](https://bioethicsresearch.org/resources/washington-university-resources/facilities/) - Resources: @Washington University Bioethics Research Ethics Facilities Facilities & Other ResourcesThe Center for Clinical Research Ethics (CCRE) provides a comprehensive consultation network that assists Institute of Clinical and Translational Sciences (ICTS) investigators and programs in addressing clinical research ethics within clinical research protocols and policies. In addition, the Center’s faculty develop and provide educational programs
- [Alison Antes](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/alison-antes/) - Alison Antes, PhDAssistant Professor Department of Medicine Division of General Medical Sciences aantes@wustl.edu AREAS OF EXPERTISEI am Co-Investigator in the Professional and Social Issues Lab. My areas of expertise include ethical decision making and personality, social, and situational influences on ethical behavior and research integrity. I also conduct research on outcomes of research ethics training
- [James M. DuBois](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/james-m-dubois/) - James M. DuBois, DSc, PhDProfessor of Medicine Director of Center for Clinical Research Ethics (CCRE) jdubois@wustl.edu AREAS OF EXPERTISEI currently run the Professionalism and Integrity in Research (PI Program); conduct research on professional lapses, outcomes of ethics training programs, and research participant attitudes and knowledge; and edit the journal Narrative Inquiry in Bioethics. PUBLICATIONS &
- [Bradley D. Freeman](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/bradley-d-freeman/) - Bradley D. Freeman, MD, FACSProfessor of Surgery freemanb@wustl.edu AREAS OF EXPERTISEOur research focus is dedicated to understanding participant preferences and concerns regarding research participation in the context of critical illness. Our hope is that the insights gained from these investigations will serve to facilitate the conduct of clinical investigations in the emergent setting while insuring
- [Joseph F. Kras](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/joseph-f-kras/) - Joseph F. Kras, MD, DDS, MAAssociate Professor, Anesthesiology Chair, BJH Ethics Committee krasj@wustl.edu Web Bio AREAS OF EXPERTISEI am currently active as an ethics consultant at Barnes-Jewish Hospital, serve as an ethics educator of medical students, residents, and nurses, and serve on the American Society of Anesthesiologist Ethics Committee. I am also a reviewer for
- [Jonathan Green](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/jonathan-green/) - Jonathan GreenProfessor of Medicine, Pathology and Immunology Associate Dean for Human Studies Executive Chair, Washington University Institutional Review Board jgreen@wustl.edu AREAS OF EXPERTISEMy primary area of expertise is in the ethics of human subjects research. I have a particular interest in the inherent conflicts faced by physician-investigators, and how they attempt to resolve their competing
- [Mary E. Klingensmith](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/mary-e-klingensmith/) - Mary E. Klingensmith, MDMary Culver Distinguished Professor of Surgery klingensmithm@wustl.edu AREAS OF EXPERTISEI have worked in the Department of Surgery to establish a case-based Ethics curriculum that was disseminated nationwide through the now-defunct Wash U. Center for the Study of Ethics and Human Values via a grant program from philanthropic support. This curriculum persists and
- [Ira Kodner](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/ira-kodner/) - Ira Kodner, MDEmeritus Professor of Surgery kodner@wustl.edu Web bio AREAS OF EXPERTISEDr. Kodner served as Director of the Center for the Study of Ethics and Human Values; Dr. Kodner led a collaborative, interdisciplinary effort to launch a Palliative Care Program at Barnes-Jewish Hospital and Washington University. Throughout his distinguished career in clinical medicine, Dr. Kodner
- [Beth Kohlberg](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/beth-kohlberg/) - Beth Kohlberg, BSN, MSRegistered Nurse bkohlberg@att.net Web bio AREAS OF EXPERTISEI have been a nurse in the neonatal intensive care unit at St. Louis Children’s Hospital for 15 years. I joined the hospital based ethics committee approximately four years ago and provide hospital wide education and participate in case discussion. PUBLICATIONS & EXPERIENCE Eight week
- [Anya Plutynski](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/anya-plutynski/) - Anya Plutynski, PhD, MA, ABAssociate Professor, Philosophy, Washington University in St. Louis aplutyns@wustl.edu Web bio AREAS OF EXPERTISEMy main areas of interest and research in the area of bioethics broadly conceived is patient decision-making about care, particularly in the context of cancer, and issues surrounding communication of risk between patients and clinicians. I am also
- [Caroline Vemulapalli](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/caroline-vemulapalli/) - Caroline Vemulapalli, LPN, MS, CCRPClinical Research Coordinator II vemulapalli_c@kids.wustl.edu AREAS OF EXPERTISEI currently manage clinical research trials within the Department of Pediatrics, Division of Critical Care Medicine, and Pathobiology Unit. In the previous 8 years I managed Inflammatory Bowel Disease clinical trials in Internal Medicine, Division of Gastroenterology. PUBLICATIONS & EXPERIENCEPeer Reviewed Manuscipts D.G. James,
- [L. Lewis Wall](https://bioethicsresearch.org/resources/bioethicsnetwork/ibn-associates/l-lewis-wall/) - L. Lewis Wall, MD, DPhil, MBioethProfessor of Obstetrics & Gynecology, School of Medicine Professor of Anthropology, College of Arts and Sciences WALLL@WUSTL.EDU AREAS OF EXPERTISEI have extensive experience in clinical bioethics, particularly pertaining to women’s health issues. I have written extensively on bioethical issues in the Third World, particularly with respect to women’s reproductive health
- [Iltis Case Study 1](https://bioethicsresearch.org/iltis-case-study-1/) - Fairness in Subject Selection: Comparing Suburban and Inner-City PopulationsAuthor: Ana Iltis Description: A researcher sees patients at two sites: one that caters to predominately inner-city patients, the other a mixture of inner-city patients and patients from the suburbs. Concerns arise about post-trial access and fair subject selection when the researcher becomes interested in recruiting patients
- [Genetic Testing of High School Students](https://bioethicsresearch.org/genetic-testing-high-school-students/) - Title: Genetic Testing of High School Students Author: Adrienne Carpenter Description: Genetics provide high school students the opportunity to undergo genetic testing to see if they are carriers of certain genetic diseases. Researchers want to explore the psycho-social effects the carrier detection program has on it's students. Keyword(s): genetic research, minors, decision-making capacity, waiver of
- [High-Risk Genetic Therapy](https://bioethicsresearch.org/high-risk-genetic-therapy/) - Title: High-Risk Genetic Therapy Best Done on Minors? Author: Adrienne Carpenter Description: Minors seem to be the prime candidates in testing a treating for Leber's congenital amauerosis, despite the high-risk level of the study. A potential scientific breakthrough is weighed against the safety of the child. Keyword(s): gene transfer research, phase I study, minors, parental
- [Hide and Seek](https://bioethicsresearch.org/hide-and-seek/) - Title: Hide and Seek: Developing Technology for People with Dementia and Alzheimer's Author: Adrienne Carpenter Description: Concerns arise about infringing upon patients' autonomy when researchers wish to "electronically tag" Alzheimer's patients to document the patients' and caregivers' experiences. Keyword(s): psychiatric research, cognitively impaired persons, surrogate decision makers/legally authorized representation, decision-making capacity, voluntariness, questionable risk-benefit assessment,
- [Selling Out?](https://bioethicsresearch.org/selling-out/) - Title: Selling Out? Making Deals with Other Institutions Author: Anji Wall Description: A university offers a post-doctoral student an opportunity to collaborate with them and offers him an incentive to leave his current position. Keyword(s): collaborative research, conflict of interest, data-sharing, research misconduct, mentor-trainee relationship, patenting Based On: (Shamoo & Resnik, 2003, p.3) Case: Matthew
- [Rules of Data-Sharing](https://bioethicsresearch.org/rules-data-sharing/) - Title: Rules of Data-Sharing in Collaborative and Non-Collaborative Research Author: Anji Wall Description: Co-investigators plan on patenting a genetic test and want to share data with collaborators and non-collaborators. Keyword(s): genetic research, collaborative research, patenting, data-sharing, ownership and access to data Based On: (Shamoo & Resnik, 2003, p. 66) Case: Dr. Brown and Dr. Smith
- [Intellectual Rights Involving Multiple Institutions](https://bioethicsresearch.org/intellectual-rights-involving-multiple-institutions/) - Title: Intellectual Rights Involving Multiple Institutions Author: Anji Wall Description: A graduate student has the same findings as his mentor and collaborating researchers from other universities; his mentor and one of the collaborators have signed an MTA. Keyword(s): MTA intellectual property, collaborative research, mentor-trainee relationship Based On: (Shamoo & Resnik, 2003, p. 137) Case: Dr.
- [Innovation or Research in Surgery](https://bioethicsresearch.org/innovation-research-surgery/) - Title: Innovation or Research in Surgery Author: Aaliyah Eaves-Leanos Description: A plastic surgeon wants to bypass accepted standards for research on grounds that they stifle "innovation," but he also stands to make a sizable profit using his innovative technique now, rather than waiting for it to be formally approved. Keyword(s): plastic surgery research, innovation versus
- [Prerandomization in Trial Designs](https://bioethicsresearch.org/prerandomization-trial-designs/) - Title: Prerandomization in Trial Designs and Research Ethics Author: Aaliyah Eaves-Leanos Description: A plastic surgeon uses an alternative study design to get high enrollment in his study. Keyword(s): alternative study designs, plastic surgery research, informed consent Based On: (Murphy, 2004, pp. 38-39) Additional Source Information: (Saunders, Baum, & Haughton, 1994, pp. 457-469) Case: Dr. A
- [Placebo Trials with Prevalent but Unproven Treatments](https://bioethicsresearch.org/placebo-trials-prevalent-unproven-treatments/) - Title: Placebo Trials with Prevalent but Unproven Treatments Author: Emily Anderson Description: At a residential treatment center for persons with mental retardation, lithium is frequently used to treat aggressive and self-injurious adolescents. However, this use of drug has never been systematically tested on this population. Investigators propose a placebo-control experimental design but some staff members
- [Political Points](https://bioethicsresearch.org/political-points/) - Title: Political Points Author: Brian Schrag, ed., Research Ethics: Cases and Commentaries, Volume 3, Bloomington, Indiana: Association for Practical and Professional Ethics (originally appeared on www.emhr.net) Description: A researcher is unsure how to disseminate potentially controversial findings regarding needle exchange programs and HIV infection rates. Keyword(s): Study design and risk-benefit analysis, other study design or
- [Motivating Research Participation](https://bioethicsresearch.org/motivating-research-participation/) - Title: Motivating Research Participation Author: Jean Campbell (originally appeared on www.emhr.net) Description: A researcher struggles to recruit sufficient numbers of mental health consumers to participate in an evaluation study of county mental health services before and after a major reorganization of the delivery system. Keyword(s): voluntariness and undue influence in recruitment, other voluntariness or recruitment
- [Maintaining Privacy in Recruitment](https://bioethicsresearch.org/maintaining-privacy-recruitment/) - Title: Maintaining Privacy in Recruitment Author: Emily E. Anderson (based on a case in Kimberly Hoagwood, Peter S. Jensen, and Celia B. Fisher, Ethical Issues in Mental Health Research with Children and Adolescents, originally appeared on www.emhr.net) Description: You want to conduct research with recovering alcoholics and must consider how best to protect participant anonymity
- [It's All the Same](https://bioethicsresearch.org/its-all-the-same/) - Title: It's All the Same Author: James M. DuBois (originally appeared on www.emhr.net) Description: A psychiatric researcher feels that a research coordinator recruiting patients for drug trials may be giving participants false hope about the experimental treatments being tested. Keyword(s): voluntariness and undue influence in recruitment, other voluntariness or recruitment issues Case: Mary is a
- [Getting Consent to do Research on Institutionalized Children](https://bioethicsresearch.org/getting-consent-research-institutionalized-children/) - Title: Getting Consent to do Research on Institutionalized Children Author: Emily E. Anderson (originally appeared www.emhr.net) Description: Investigators studying the neurological correlates of AIDS in infected children evaluate the risks and benefits to institutionalized child participants. Keyword(s): study design and risk-benefit analysis, institutionalized populations, minors (children, adolescents) Based On: Kimberly Hoagwood, Peter S. Jensen, and
- [Waivers of Parental Permission for Research with Gay and Lesbian](https://bioethicsresearch.org/waivers-parental-permission-research-gay-lesbian/) - Title: Waivers of Parental Permission for Research with Gay and Lesbian Author: Emily E. Anderson (originally appeared on www.emhr.net) Description: Researchers seek a waiver of parental/guardian consent for a study examining psychosocial stressors and anxiety and depressive disorders in gay and lesbian adolescents. Keyword(s): special populations and cultural competence, minors (children, adolescents); decision-making capaticy, assent,
- [Reporting Adverse Effects](https://bioethicsresearch.org/reporting-adverse-effects/) - Title: Reporting Adverse Effects Author: Anji Wall Description: A researcher finds out that a drug she is promoting at a pharmacological conference may have serious adverse effects. Keyword(s): conflict of interest, mentor-trainee relationship, withholding data Based On: (Shamoo & Resnik, 2003, p. 157) Case: A researcher at a prestigious university has a postdoctoral fellow who
- [Pirated Idea for Research](https://bioethicsresearch.org/pirated-idea-research/) - Title: Pirated Idea for Research Author: Anji Wall Description: A reviewer from an NIH study section gives a trainee a research project based on a submission she reviews. Keyword(s): plagiarism, ORI, intellectual property, mentor-trainee relationship, publishing, peer review Based On: (Shamoo & Resnik, 2003, p. 137) Case: While reviewing a grant proposal, a member of
- [Failed Patenting Negotiations in Collaborative Research](https://bioethicsresearch.org/failed-patenting-negotiations-collaborative-research/) - Title: Failed Patenting Negotiations in Collaborative Research Author: Anji Wall Description: People withing a multi-institutional project did not devise a contract regarding intellectual property until it was too late. Keyword(s): collaborative research, intellectual property, conflict of interest Based On: (Shamoo & Resnik, 2003, pp. 136-137) Case: A university faculty member began collaborating with a Spanish
- [Procrastinating Reviewer](https://bioethicsresearch.org/procrastinating/) - Title: Procrastinating Reviewer Author: Anji Wall Description: A procrastinating researcher must face a review board when he has not finished his assignment. Keyword(s): peer review, funding Based On: (Shamoo & Resnik, 2003, p. 88) Case: A busy researcher is part of an NIH grant review committee. He was given one month to review 35 proposals.
- [Robbing the Grave](https://bioethicsresearch.org/robbing-grave-investigator-takes-ownership-deceased-scholars-work/) - Title: Robbing the Grave: Investigator Takes Ownership of Deceased Scholar's Work Author: Anji Wall Description: A new faculty member replaces the deceased mentor of a graduate student and takes credit for a manuscript prepared by the deceased. Keyword(s): authorship, mentor-trainee relationship, research misconduct, plagiarism Based On: (Shamoo & Resnik, 2003, p. 65) Case: Melissa is
- [When to Withdraw a Subject](https://bioethicsresearch.org/when-to-withdraw-a-subject/) - Title: When to Withdraw a Subject from a Study Author: Adrienne Carpenter Description: A patient's psoriasis worsens while taking study medication. Her condition should improve once she has taken drugs that have worked for her before, but are not allowed in the study. Keyword(s): role conflict, withdrawal from study, randomized control trial (placebo), research related
- [The Follow-up Process](https://bioethicsresearch.org/the-follow-up-process/) - Title: The Follow-up Process: Obligations of Researchers to Anonymous Donors Author: Adrienne Carpenter Description: A small monetary incentive entices people to donate genetic, material anonymously for CF research and future unspecified research. This case study considers researchers' duties to anonymous subjects. Keyword(s): genetic research, informed consent, payments, post-trial access, fair subject selection, privacy/confidentiality, anonymity, duty
- [Property, Privacy, and Public Health](https://bioethicsresearch.org/property-privacy-public-health/) - Title: Property, Privacy, and Public Health Obligations at Conflict in AIDS Research? Author: Adrienne Carpenter Description: Blood samples are used for an HIV surveillance program without consent. Keyword(s): undervalued/stigmatized group or condition, privacy/confidentiality, anonymity, future research on stored samples, public health research, epidemiology research Based On: (Brody, 1998) Case: In an attempt to accurately predict
- [Oncology Study Guised as a "Program"](https://bioethicsresearch.org/oncology-study-guised-program/) - Title: Oncology Study Guised as a "Program" Author: Adrienne Carpenter Description: A cancer research institute does not disclose to communities that smoking cessation programs are more than an intervention service but a research study. Keyword(s): randomized controlled trials, waiver of informed consent, privacy/confidentiality, deception, public health research, scientific validity Based On: (Brody, 1998) Case: A